CONFUSED WITH RESULTS END OF THE ROAD?

[MrsAristotle]

Hi well all my tests for lyme are back.

I have tested positive for 5 bands:

IgG 23
      31
      39
      41
      66
      93

3 bands Igm

23
39
41

On the paperwork from Igenex, and Immunosiciences it says you have to have 5 bands specific IgG and 2 of IGM, well i have 6 and 3.

I have just received the last results from Invitalab and it says MELISA negative.

No active lymes.

So does that mean I dont have it now then, but did have it one time.

This is a good result isnt it does it mean I can rest easy and it isnt lymes anymore?

So confused with all this to be honest, and i cant talk to my doctor untli the end of the month lol.

My sympoms are worsening the burning in my legs is constant right now, so it is looking perhaps it is MS after all. Mariax

[TheLightSeeker]

Hey Maria!
This is becoming quite a thread.
While we're at it, don't forget Bartonella!
The photos you sent-remember?- and the symptoms you mentioned were SCREAMING Bartonella !!!
Blood tests for most strains are not sensitive enough to detect it and the same for Ehrlichia- as Rico mentioned - (there are no tests for many species)- so a clinical dx is probably necessary.
This means that your  specialist will have to be darn good!

It seems that we're gonna be keeping an eye on you, as long as you keep
posting and giving us updates.
Hugs.
Niko

Rico's  antibiotic challenge suggestion would make sense at this point.
Rico. You've come a Looong way since we first met last year!

[Ricobord]

Yes, what a mess! Very confusing.  Sounds like a good reason to send patients an actual copy of the lab results rather than dictating letters.

I haven't given up on Lyme for you either.  You have Ehrlichia, which comes from a tick bite, and you have symptoms consistent with late stage neuro Lyme, and you don't fit the MS profile enough to get a diagnosis of it.  You have some evidence of Lyme...has your doctor said anything about doing an antibiotic challenge for you?  I think it would be worthwhile.

[TheLightSeeker]

Maria just compare those against the list from IGeneX in my post.
Abnormal brain function, neurotoxins produced by Bb, lyme meningitis
and other neurological manifestation with Lymes is likely and  this  can make the simplest  cognitive tasks very difficult!
( It seems that I'm going with the LD dx for you, but let us know which bands were there.)
Take extra time, ask questions, even if you feel that they're stupid,
don't worry about it! Everyone in this community understands, otherwise what are THEY doing here, right?
So just ask.
Hugs,
Niko

[JackieCalifornia]

"So i do have 3 igG, and 1 igM.

"So nothing really."

Which bands were these?  That matters!  And how many * did they each have?

[MrsAristotle]

OH NO WHAT A MESS. I DONT HAVE LYMES.


I kept thinking about the results AFTER WHAT Niko wrote and re read the copy of the  letter this morning which  I had just received which was originally sent to my doctor which was sent by Dr munro and it didnt make no sense, so I checked back on the Igenex results, and have found a real mess.

I dont have 6 IgG.

What has happened is Dr Munro must have dictated some of the letter to her secretary and gave her a copy of the results from Igenex and immunosciences, and what I think has happened is she has seen the stars by the side of the numbers and just assumed those were the results i had.

BUT they are not. The stars are the bands they would expect to see on a western blot which I knew anyway.

So she has typed them all down and when I read the letter it reads as though I have those bands but I dont as when i went through my results this morning I could see straight away what she has done.

So the results are just as they were from the beginning and the only difference is the immunoscience finding the positive IgG Outer Surface P. A=C 1.4 Lyme antibodies (peptides), and the and IgG C2 + C6 immunodominant at 2.1.

I feel really stupid now.

So i do have 3 igG, and 1 igM.

So nothing really.

I was so upset I rang and spoke to her secretary and she said she had misunderstood what was meant to be written to my doctor. Thankfully my doctor had no clue what the results meant as I spoke to her today so no harm done there then.

So still totally non the wiser.

I did think it was odd when i got a copy of the letter and all the results lol, i just assumed it was right, as my brain i thought the extra results were from immunosciences as there was tons of stuff on the results form I didnt understand.

I give up to be honest.

Its all too confusing. I am destined to stay in limbo land. maria

[mojogal]

Believe it or not, it's good news. I was told I had MS and I much rather have Lyme because you can be cured. I try to stay positive, not always easy but possible.