This is great. I think a cyber party is well in order. Don't worry about breakfast, it's on me.
Thanks Mary 53 for the invite! Some of you may know me as Gatsby
Look forward to Saturday!
~Tascha
Hi Jan... I live down near Melbourne, in the little southern state of Victoria. I have a friend in Idaho, and there is presently an eighteen hours difference, ( we are ahead of the U.S.)so when I get on my computer here, she is in bed....but as you say, we can still post. Never know, could find a nightowl over there. :-) hugs to all...Helen..
Hi!
I just E-mailed this thread and a special request to Mary (RavenLady) to see if she is able to host a party Saturday night. She is the best.
Paula...once again, you read my mind (how do you do that?). I was recalling, too, the times Mary would post the weekly schedule of upcoming surgeries. Amazing and so supportive.
Also, as Paula mentioned, it was neat to catch up on the posts from both near and far the next day and even into Monday. On Sunday morning, Tascha would drop by (the cyber party) with Cinnamon rolls and orange juice ....sometimes spiked!.... before she started her day. I will Email her, too, by the way.
OK....coooool idea.
And, hey, there's room for all of us....and thanks to MedHelp the space is even bigger....YIPPEE!
Love, Mary
Neat idea Jan. I think that sounds fun. It would be nice to have times where we could talk in "real time" rather than questions just waiting on the board. Plug me in where you think I could help the most.
I think it would be nice if several of us could give our opinions on each post. Sometimes posters only get one response but would like to have several opinions even if they are in agreement. Just a thought.
Shelly
First I want to thank all of you for your care and concern while I was sick this past week. It is nice to know that so many people care!
Jan I agree with you about "the neighborhood" but you know what? I feel much closer than that. I feel as if this forum is an extended family. I too have taken to writing in a spiral notebook so that I am able to keep track of names, birthdays, surgeries, etc. If I didn't I would be totally lost. I do good to remember my own name sometimes!
To those of you who have been fortunate enough to not have ov ca, that does not mean that you have to leave or be afraid of taking up space. We love to hear great news like that! And if there was anything that we could do to help you get through that time of not knowing, well, that makes us feel good too.
You Aussie ladies. Some of us are night owls. I regularly chat on another forum with a gal from "down under" as I am usually up fairly late at night. Just post a message sometime.
I will try to help out where ever I can. After all, thats what family does.
Love, Chris
I never got to participate in the cyber parties. I didn't have the internet at home at that time. When I finally got it the parties stopped. Go figure. But they were wonderful reading on Monday mornings. Those ladies really knew how to party. I miss it. Raven was not only the host of the cyber parties, but she also had a list or a very good memory of everyone that had upcoming surgeries, and she would post something the day before or the Friday before. She was very good at it, made everyone feel special. At least it made me feel special that she remembered.
Jenny-go to the archives and look up some of the cyber parties. The Aussie ladies partied when we went to bed. That is what made the parties special. It didn't matter what time you posted. Someone would come on at all hours and pick it back up.
I think it is a great idea but unfortunately due to the time difference between Australia and the states I won't be able to join in as I am normally posting when you are all snoozing. I hope this is the start of a good year for all of us.
Hugs to all
Jenny
Thank you so much for this post Jan, I have been lurking for a couple of weeks now and posted once or twice but was feeling that as i am not diagnosed i shouldn't be invading your much needed space. But now you have given me the strength and courage to go on and make a post about what is happening for me at the minute.
If i stay around, i'm a book lover, so maybe could start a thread for books? But time will see i suppose....
Thank you to you all x
I didn't see your reply about posting the birthday or good news until after I had already posted. If someone tells me what to do, lol, (I take good directions), I would be more than happy to do that. Just let me know :)
Colleen
Helen: Those of you that are in completely different time zones or sleep patterns can always posts the next days list of birthdays or surgeries or chemo's etc. That is the perfect time to do it. Also those of us like Deandra, myself and i am sure others could have our own late night parties. It is always hard to wrap my brain around time zones, but when I looked at Austrailia depending where you are it is somewhere in between 1:15 PM and 5:45. That is a big time difference, but still there are some overlapping times depending on your schedule. What city do you live in?
Mary: That would be great if you could contact her. Maybe she would do the honors and host the party. I hear she was very good at it. If not maybe one of you ladies that participated could get the ball rolling.
Sandy: That is really great news. I hope it always stays that way. When you come around, don't lurk. Come in and say hi! I am sure we would all ask that you take what you know out in the world and you tell as many women as you can get to listen; and you will be surprised how many really start to listen. Praying for and reaching out to strangers is what I believe Jesus has called us to do. Whatever our individual beliefs, most everyone on here can agree that basic human kindness and compassion is reason enough to reach out.
Sharon: Thank you for your kindness. I think that is a wonderful idea. Maybe we can find someone who would be willing to teach spanish. Perhaps you can teach them something they would like to learn or maybe of group can get together to learn something. It would be easy enough. You would just have the tutor write in spanish with an english translation and it would conversational stuff so I do think it would be easier to pick up. You would have to respond in mostly spanish and they could correct it and also write something new. When I took it in college (like Algebra got A's didn't retain it) we learned by conjugating verbs and by categories like food, occupations, types of buildings, shapes, colors, etc. It was really fun and had I used it I am sure I would have retained it. No, the times are in SimplyStars CST. That would be 7 your time. I have always wanted to travel to Oregon and Washington. Except Alaska the only states I have not been to.
Thanks everybody you all are wonderful
Jan
Jan, you are such a wonderful, warm person! Your posts have been so helpful to me and you are such a joy! This might sound weird, but do you know what I would like to do? I want to learn Spanish and I don't know where to begin!! Is anyone interested in helping me out with this? I understand conversational is the easiest way to learn. I need a Spanish speaking buddy :-) I'm not sure how it might work, but I'm willing to ask my neighbors what they think of the idea :-)
I will try to log in to the chat room sometime. My time is so much less now that I'm back at work...by the time I get through traffic and make it home I'm exhausted and have do get ready to do it all again the following day! Are the chatroom times in Eastern time zones?
Sharon
Hi Sandy.. it's good to hear that great news. I hope you continue on throughout life staying well....hugs...Helen..
I, like Colleen , have been reading the posts for about 2 months now. I am so impressed with the knowledge and the caring that is expressed from all of you. I finally found out today that I do not have cancer as feared. I had some of the symptoms and with your help, I was able to find out so much about this hideous disease. I was able to ask questions of my Dr.that would never have occured to me before I came to this "neighborhood".
I learned a lot --mostly that this disease doesn't get nearly the "press" that it deserves, that much funding is needed and public awareness is so necessary. The more people that learn about this cancer the more people will be informed and be advocates for their own care before the disease becomes advanced.
I had just a niggling little pain in ovary that I thought was Diverticulitis.. felt just like it.Also backache. Luckily my Gyn. wanted to rule out anything ovarian. Had the US which showed a 2mm solid mass on left ovary, 2 fibroids and fluid in uterus. Had the CA 125 which was 7 but I learned from you folks it wasn't necessarily accurate in all cases. I was told by my Dr. I could just monitor these things. Being the worry wart that I am, I opted to have ovary and fallopian tube removed. It did indeed prove to be benign which Dr. suspected but it's always good to be sure. (I am post menopausal so removal of ovary wasn't a problem) . I just wanted you to know how appreciative I am for this forum. I will continue to "lurk" from time to time if that's o.k. and any information I have gleaned from you will definitely be passed on. You are a wonderful group.. I will keep you in my prayers even though I don't know you. Again, thank you for being there.,
Sandy
This is a post from Apr 02, 2007 12:00AM To Ravenlady...Ravenlady and Tascha started the Cyber Parties about two years ago. I used to arrange my Saturday nights around them and will again. This is a comment that was made after the party from one of the members.
"Thanks for the lovely cyber-party saturday night. I was very high strung just thinking of upcoming test results.
I had fun and I didn't even think about the test.
You and all the other lovely ladies made my evening go by fast to where I was actually tired." (Post from a member)
AND....get this!!! We had 92 posters... (not nessarily 92 different people, but posts...it was hopping). I will send RavenLady an Email to let her know we are having a party. Love the idea!
Love, Mary
Hi Jan... You've wheeled out some good ideas, :-) but it's a little hard for us down in the Southern Hemisphere to be here at 'peak hour'. I generally post when you lovely ladies are getting your beauty sleep, but still there in spirit. Wishing everyone well, and happy times ahead for us all...hugs....Helen..
Thank you! That is very sweet of you! It is so nice to be able to come on here and find answers and talk to others that are feeling the same way - the frustration with doctors, and just having someone who understands that the way you are feeling matters and is not normal for you. Anyway, I wish desperately that I had some answers for you all and that there was not this terrible disease. My heart and prayers are always with you. Thank you for making me feel so welcome.
Colleen
I would like to set up a time or a post or something with a signup sheet for some of these things we have talked about. Any suggestions on how best to do that?
Lvfrogs: if you can't be on to join in a party or a chat maybe you could be one of the people that volunteers to put up a birthday post once a month or post the good news post once a month. Those are things you can do anytime of the day, when you have time. There are plenty of things you can do if you can't commit to a certain time.
Of course you would be welcome and anyone who would say otherwise wouldn't be. If you couldn't be part of us than neither could SimplyStar or many others and that is just not acceptable.
I just wanted to say that I am one of the women that reads the posts and sometimes responds and who doesn't have cancer. I am still trying to find out what IS wrong with me, having all the signs of ovarian cancer and struggling with my gyno to do something.
I want to say that I have been helped SO MUCH and have learned SO MUCH from the women on here. I wish I could express to you all how grateful I am. I feel everyone's compassion. I don't know if I can participate in the CYBER parties or the morning chats, but I hope that if I can, I will be welcome. If I can help in anyway, I would love to be able to. You are all in my prayers. Thank you.
Colleen
The gloom and doom is about ready to leave, we have the chat room up and going now and will be reviving the CYBER partys this Sat night. Get out those smiles and join us for some lively times. Marty
I totally agree!! I too feel the gloom over us. I have been here for almost two years now, and have seen people come and go, seen people die and just get diagnosed. I am feeling very depressed about everything now, and I can feel the pain of many people. I am glad I you can feel it too. Shannon
You're always worth a million in my book! :) Thanks for the post -- still trying to digest it all. Love you lots!! :)
Hugs, Fran
think I fixed it now I am so new to chat rooms, there are too many buttons to push lol
will try to go fix it right now