I have a question about ovarian cysts, cancer, and symptoms. I apologize for making this so long!
I am a very healthy, 35 year old, mother of two boys. I am extremely active with yoga and hiking. My career is built around a healthy lifestyle as disease prevention (specifically cancer) and nutritional healing (mostly cancer/ also food allergies and lifestyle diseases). From bout the first week in December 2014-mid March 2015, I went through a very abnormally stressful time.
I recently had a copper IUD taken out in Oct 2014 because of constant pain in my abdomen. When my gyn removed the IUD she did an ultrasound and everything seemed to be just fine. I felt great afterwards... no more pain. I tried to start taking the chewable birth control pills in January but they made me have terrible moods swings and brain fog. I am normally very calm... but not on birth control pills!
I was fine until late Jan 2015, when I started to have an aching pain all the way across my abdomen. Probably by mid February, the pain had spread across my lower back. It was very similar to the pain from the IUD where my abdomen was constantly inflamed from reacting to the IUD. I started feeling tired all the time in about Feb but thought it was just stress. Starting in the beginning of March, I felt a twinge in what seemed to be my hip flexor muscle. I constantly tried to 'stretch it out' but could never hit a stretch where I could feel it pulling the pain out.
The pain in my abdomen and lower back has continued constantly and can sometimes be sharp. The fatigue is relentless. I used to be up and going by 5am and am now dragging and sleeping for 10 hours at a time. It's like I can't get enough sleep to 'satisfy my body'. The pain in my groin/ hip flexor area has gotten progressively worse and is now painful to a point it impacts my daily life. I've been doing yoga for 20 years and now can't even sit indian style or cross my legs, it hurts to cross my legs, to sit to drive, and some days even hurts when just walking. The right side of my abdomen is swollen all the time (more on the right) and my groin area is swollen on that side, as well. I have also lost almost 20 lbs since March, it's April now. I feel like eating is a chore now and have to really focus to make sure I eat... I get full very quickly and it is difficult.
The first weekend in April, I forced myself to do a light trail hike with my oldest son and had to stop along the way, because it felt like something was painfully twisting something inside my abdomen and hip flexor area. I should note, nothing ever slows me down. I have an extremely high tolerance for pain, almost dangerously so. The best example I have that would give perspective here, is that I drove myself to the doctor -after my water broke (after I finished cleaning my kitchen)- when in labor with my second child. I didn't even realize I was in labor, I went because my back hurt and I was leaking fluid (water). My midwife almost had a heart attack when she examined me... For anything to 'stop' me, I started to get worried and made a doctors appointment the next morning for late that afternoon.
I went into my regular gyn office for fatigue, pain and tenderness, swollen abdomen, and weigh loss. I barely got in and was the last appointment of the day... The nurse didn't weigh me, she could have to compare for the weight loss since I was just there in January. The doctor examined me and did an ultrasound which revealed two cysts on my right ovary... I had explained to her that I recently went through a stressful time and she just really focused on that and told me I needed to relax and let things go. I wasn't meaning I was still stressed about it, because I'm not, just that it happened and could have contributed to my current health. She said she was ordering a CA125 test for me, but then I ended up being kind of rushed out without it happening- just being reprimanded for being tense (I was nervous) and told I needed to let things go. My level of pain was not even addressed, no solutions were given, and I was told to just come back in a couple months to have them checked again. At the time, I didn't know that the CA125 was a cancer marker test... How do you forget to do a cancer marker test on your patient after ordering it?
Once I figured out what that test was (google) I had a doctor friend draw my blood and run it. She said it came back within the normal range... I know the test isn't always accurate though, especially in early stages. I know I didn't have any growths in October when I had my IUD out and they seemed pretty small to me (I'm not sure what they measured).
The reason I am concerned is because nothing ever slows me down... I will work all day, then go rock climbing at night. I just feel like something is wrong... There is no reason for my lymph nodes to be so painfully swollen without any other infection present. The pain and fatigue is relentless and I am so frustrated with it. I am closing my shop because I physically can't keep up and obviously need to resolve my health issues... But, I don't know where to go for someone to listen to me. I tried my primary care doctor but he just kept saying, this wasn't his area of expertise and wanted to run a thyroid panel (which I did). I also had him run a CBC... but he didn't even examine me. He wasn't concerned about my weight loss at all... or the pain... and said sometimes your lymph nodes can swell from shaving!? I haven't had any infections- my gyn said there are no signs of anything bacterial, viral, and no yeast- nothing.
Has anyone had an experience like this? What did you do? Living with constant pain and fatigue is not an option for me... I can't even sit correctly because it almost feels like I am sitting on something. Not to mention, I know it is very rare, but I want to know for sure if I have early stages of cancer or not. I know I seem young and healthy because I live a healthy lifestyle- but I now weigh about 108 and am 5'7", that is not healthy. I feel so weak, like I have just lost all my muscles and strength. I'm just sick... and need answers. I'm about to just make an appointment at the Mayo clinic so I can get someone that wants to figure this out and solve it...
The only cancer that I have in my immediate family, is bone cancer.
Any help and advice is appreciated!! Thank you so much!