Anyone with diaphragm paralysis?

[Kennium]

Is there anyone else out there suffering from paralyzed diaphragms?
If so, what has helped you?
I have bilateral diaphragmatic paralysis, sleep apnea, and enlarged heart, small lungs, and I retain carbon dioxide which causes migraine headaches.
Is there anyone else suffering from the same symptoms?
What have they done for you?

[ted733]

Have left diaphragm paralysis and sleep apnea. As understood by me, if the right diaphragm goes, I go. Asked my VA doctor about plication, and he referred me to a pulmonologist. When I showed up, the "pulmonologist" was a physician's assistant. I am severely short of breath on exertion, and Thursday I have an appointment for an echocardiogram. If that goes well, going to push my Primary for another pulmonology appointment. I'll try to keep you posted on whatever happens.

[aimee77391]

I was diagnosed with left sided diaphram paralysis after open heart surgery to repair a tricuspid valve.  I also had a heart transplant in May 2007.  Im suffering from no sleep.  Having trouble with nights and cant seem to get used to the bypap.  If no improvement soon have to see about surgery.   Ughhhh!

[breathless56]

I just received the diagnosis of right diaphragm paralysis today after months of doctors just telling me I was short of breath because I was fat.  My insurance changed July 1 and I finally got an appt with a pulmonologist 10 days ago.  He said he thought it was diaphragm paralysis after a 10 min. exam.  The sniff test and pulmonary upright and supine studies I had yesterday confirmed it.  A nurse called me to tell me the diagnosis.  I tried to ask questions, but she didn't have answers except to say the dr said I was not a surgical candidate.  They told me treatment was CPAP, which I've used for 9 years, and exertion as tolerated.  When I walk from handicapped parking into a store, I'm so out of breath I get asked if I need an ambulance.  This week I had 2 spells where I nearly fainted from shortness of breath.  I'm not happy with a nurse telling me there's no treatment.  I asked if it would get better or worse and the nurse told me it would not get better, but would not comment on whether it would get worse or a prognosis.  I'm not happy that the doctor chose not to speak to me regarding the diagnosis.  I have questions for which I can't get answers.   I will have an MRI next week to see if something in the cervical spine could be suppressing the function of the frenetic nerve.  I don't know if that means something can be done or not.  The nurse didn't think so.  So, I'm not certain why we're doing the MRI.  I need to know how to help myself.  What websites give reliable info on this condition?  What can I do to improve my quality of life?

[cherich6845]

Did you have difficulty getting your disability.  My husband is.  He can't walk further than 15 feet without huffing and puffing.

[MrTaft]

No I really Did not have trouble getting my Disability. I have NYS Retirement and to get that at 42 years of age under Disability they tell me is a year process and I have it in 4 Months. To get SS Disability I had in 3 Months. I think it had a lot to do with my Doctor's Office. They were on top of things and did not drop the ball on anything. If you are having a lot of trouble I would tell you to get ALL Documents from ALL your Doctors and then contact your local Senater's office for help. You as a Voter and the fact your Husband has this problem is There is a growing issues with Bilateral Diaphragmatic Paralysis and Insurance Companies need to know it. If I can help I will. You might also want to contact a Lawyer cause sometimes that is the only way to get a win with SSD. If you need any more help contact me through my E-Mail ***@**** I will help in anyway I can!

[dillon780]

hai

My dad has recently diagnosed with diaphragm dysfunction , he can't breath if  he lay flat on his back. now docs are telling they can try to find a treatment if they can do MRI scanning ,since he can't lay on his back they cant do MRI  scanning ..
For past 6 months he is sleeping on sitting position ,we tried BIPAP but he is uncomfortable with it .

Do anybody know a way to get his MRI done ...