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Penile pain, burning and itching genitals
I am a 28 year old male. The symptoms I am about to describe began suddenly around August 2005. At first they were chronic; lasting all the time for about 2 weeks, after which I would be symptom free for a month or so. Gradually over time, the period in which I sufferred the symptoms lengthened and the period for which I was symptom free shortnened, to the point where I would say for the last 9 months I have sufferred these symptoms 24 hours a day, 7 days a week.
My groin area constantly feels "clammy" and sticky, much like you might feel after a long run. My genitals are constantly itchy in various places on my penis, testicles and pubic area. When I sit down, I experience a burning / prickling feeling in my groin, buttocks and thighs. The feeling is constant but is not generally felt when standing up or lying down. Minimal alleviation from the burning feeling is gained if I sit on a donut shaped cushion, but it does not help much. I also experience sharp stabbing pains in my penis from time to time, which was in fact the very first symptom I felt when this all started happening.
More recently now I do not seem to have the same pressure when urinating and I can't seem to squeeze everything out like I used to. No matter how much I shake afterwards, a little more urine always seems to drip into my pants afterwards.
I saw a urologist very early on in the picture; he performed a cystoscopy and prostatic massage which did not show any abnormal results, however it was likely that when he performed this it was in between times where I was sufferring symptoms. I also took a couple of courses of Ciprofloxacin which did not help at all. I have also been checked, re-checked and cleared on any STDs. I should also mention that there are no visual symptoms; sores or rash etc.
I have seen a neurologist who has tested me to the limits of his field of expertise, including MRI, nerve conduction studies, a lumbar puncture and various blood tests. He was unable to find a neurological reason for my symptoms.
I am now going to seek a second opinion from a urologist given the progression of my symptoms over time. In the mean time, if anyone can relate to these symptoms and offer some kind of advice or guidance that would be much appreciated. I am sufferring from this 24 hours a day 7 days a week and it is destroying my quality of life. The most frustrating thing is that as yet no one has been able to give me a definitive diagnosis of what this is.
Please help
My groin area constantly feels "clammy" and sticky, much like you might feel after a long run. My genitals are constantly itchy in various places on my penis, testicles and pubic area. When I sit down, I experience a burning / prickling feeling in my groin, buttocks and thighs. The feeling is constant but is not generally felt when standing up or lying down. Minimal alleviation from the burning feeling is gained if I sit on a donut shaped cushion, but it does not help much. I also experience sharp stabbing pains in my penis from time to time, which was in fact the very first symptom I felt when this all started happening.
More recently now I do not seem to have the same pressure when urinating and I can't seem to squeeze everything out like I used to. No matter how much I shake afterwards, a little more urine always seems to drip into my pants afterwards.
I saw a urologist very early on in the picture; he performed a cystoscopy and prostatic massage which did not show any abnormal results, however it was likely that when he performed this it was in between times where I was sufferring symptoms. I also took a couple of courses of Ciprofloxacin which did not help at all. I have also been checked, re-checked and cleared on any STDs. I should also mention that there are no visual symptoms; sores or rash etc.
I have seen a neurologist who has tested me to the limits of his field of expertise, including MRI, nerve conduction studies, a lumbar puncture and various blood tests. He was unable to find a neurological reason for my symptoms.
I am now going to seek a second opinion from a urologist given the progression of my symptoms over time. In the mean time, if anyone can relate to these symptoms and offer some kind of advice or guidance that would be much appreciated. I am sufferring from this 24 hours a day 7 days a week and it is destroying my quality of life. The most frustrating thing is that as yet no one has been able to give me a definitive diagnosis of what this is.
Please help
Hello again,
This post is an update to two earlier posts directly above.
A few weeks ago I became aware (from the Internet) of medical conditions called Mast Cell Activation Syndrome (MCAS) and Mastocytosis. The medical community only become aware of MCAS within about the last ten years, and is still early on the "learning curve" about it. The incidence of MCAS diagnosed within the general population may become quite significant as more research is done, and more doctors and medical people become familiar with it. Mastocytosis has been known about for a longer time and apparently is very rare.
I believe it's possible that I may have MCAS. I put together a list of current and past symptoms that are consistent with this syndrome. Items one and two on my symptom list are chronic itching and chronic fatigue.
If I have MCAS, I'm lucky; in that many people that have MCAS have more and different symptoms that are much more severe than mine. It would also mean that the root cause(s) of the symptoms are of an immune system nature rather than neurological. The immune system and autoimmune processes can affect multiple body systems, including the nervous system.
Here is a web link about Mastocytosis and MCAS.
https://tmsforacure.org/overview/
Another web link (paper) that might be of interest is:
"Pharmacological treatment options for mast cell activation disease"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4903110/
Some people (perhaps including me, it's too early to tell) can get significant relief from MCAS symptoms with widely available and inexpensive medications; whether they have been "officially" diagnosed with MCAS or not.
One last web link (below) is a listing of mast cell disease treatment and research centers.
https://tmsforacure.org/mast-cell-disease-treatment-research-centers/
Last week I saw an allergy/immunology specialist for the first time. We agreed that for me, getting an official MCAS diagnosis won't be necessary if the simple medications he prescribed and recommended for me "work." So far (knock on wood) I believe that they are helping significantly.
If these simple medications work for me, it is because they are addressing the root cause of my symptoms (inhibiting inappropriate and/or excessive release of "mediator" compounds from mast cells).
Best wishes
This post is an update to two earlier posts directly above.
A few weeks ago I became aware (from the Internet) of medical conditions called Mast Cell Activation Syndrome (MCAS) and Mastocytosis. The medical community only become aware of MCAS within about the last ten years, and is still early on the "learning curve" about it. The incidence of MCAS diagnosed within the general population may become quite significant as more research is done, and more doctors and medical people become familiar with it. Mastocytosis has been known about for a longer time and apparently is very rare.
I believe it's possible that I may have MCAS. I put together a list of current and past symptoms that are consistent with this syndrome. Items one and two on my symptom list are chronic itching and chronic fatigue.
If I have MCAS, I'm lucky; in that many people that have MCAS have more and different symptoms that are much more severe than mine. It would also mean that the root cause(s) of the symptoms are of an immune system nature rather than neurological. The immune system and autoimmune processes can affect multiple body systems, including the nervous system.
Here is a web link about Mastocytosis and MCAS.
https://tmsforacure.org/overview/
Another web link (paper) that might be of interest is:
"Pharmacological treatment options for mast cell activation disease"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4903110/
Some people (perhaps including me, it's too early to tell) can get significant relief from MCAS symptoms with widely available and inexpensive medications; whether they have been "officially" diagnosed with MCAS or not.
One last web link (below) is a listing of mast cell disease treatment and research centers.
https://tmsforacure.org/mast-cell-disease-treatment-research-centers/
Last week I saw an allergy/immunology specialist for the first time. We agreed that for me, getting an official MCAS diagnosis won't be necessary if the simple medications he prescribed and recommended for me "work." So far (knock on wood) I believe that they are helping significantly.
If these simple medications work for me, it is because they are addressing the root cause of my symptoms (inhibiting inappropriate and/or excessive release of "mediator" compounds from mast cells).
Best wishes
This post is not an answer to a particular post or question. It’s a summary of my own experience and treatments for chronic itching and burning sensations, in case the information might be useful.
I had severe chronic itching and burning sensations in my groin and upper inner thigh areas, which built up over roughly 18 months. Medical specialists indicated that it was an unusual form of neuropathy (versus a skin problem or infection). Methods used some months ago to mitigate symptoms, and which incrementally helped, included different clothing, menthol powder, gabapentin, and an “over the counter” (OTC) transcutaneous electrical nerve stimulation (TENS) device. (If you ever intend to try a TENS device, follow the safety precautions and instructions that come with it.) Began taking vitamin B-12 and vitamin B complex roughly seven months ago (as sublingual liquids), and had multiple acupuncture treatments. I am diabetic, which may or may not be relevant.
More recently (a few months ago) a doctor had various lab tests done on my blood. He recommended and prescribed intravenous (IV) infusions of magnesium chloride (along with some vitamins), IV infusions of alpha lipoic acid, some other supplemental vitamins, and referred me to a nutritionist to improve my diet. I recorded and graphed symptom levels day by day over time in order to hopefully identify beneficial treatments and events.
For me, it appears that the (multiple) magnesium chloride infusions have been very beneficial. Starting about three weeks after the first magnesium chloride infusion, the symptoms have been slowly and semi-steadily decreasing to much lower levels as of now (roughly three months after first magnesium chloride infusion). The infusions are spaced at least one week apart. Before the start of the infusions, the level of “magnesium RBC” in my blood was within a “reference range”, although it was towards the low end of the range. It’s possible that some or all of the other things recently recommended, prescribed, and tried are also helping, although I don’t see other obvious “causes and effects” besides the apparent very significant beneficial effect of the magnesium chloride infusions.
I plan to ask if OTC pills containing magnesium might be a long term solution to my problem, given that pills would be more convenient and less expensive than infusions.
Best wishes and good luck to all.
I had severe chronic itching and burning sensations in my groin and upper inner thigh areas, which built up over roughly 18 months. Medical specialists indicated that it was an unusual form of neuropathy (versus a skin problem or infection). Methods used some months ago to mitigate symptoms, and which incrementally helped, included different clothing, menthol powder, gabapentin, and an “over the counter” (OTC) transcutaneous electrical nerve stimulation (TENS) device. (If you ever intend to try a TENS device, follow the safety precautions and instructions that come with it.) Began taking vitamin B-12 and vitamin B complex roughly seven months ago (as sublingual liquids), and had multiple acupuncture treatments. I am diabetic, which may or may not be relevant.
More recently (a few months ago) a doctor had various lab tests done on my blood. He recommended and prescribed intravenous (IV) infusions of magnesium chloride (along with some vitamins), IV infusions of alpha lipoic acid, some other supplemental vitamins, and referred me to a nutritionist to improve my diet. I recorded and graphed symptom levels day by day over time in order to hopefully identify beneficial treatments and events.
For me, it appears that the (multiple) magnesium chloride infusions have been very beneficial. Starting about three weeks after the first magnesium chloride infusion, the symptoms have been slowly and semi-steadily decreasing to much lower levels as of now (roughly three months after first magnesium chloride infusion). The infusions are spaced at least one week apart. Before the start of the infusions, the level of “magnesium RBC” in my blood was within a “reference range”, although it was towards the low end of the range. It’s possible that some or all of the other things recently recommended, prescribed, and tried are also helping, although I don’t see other obvious “causes and effects” besides the apparent very significant beneficial effect of the magnesium chloride infusions.
I plan to ask if OTC pills containing magnesium might be a long term solution to my problem, given that pills would be more convenient and less expensive than infusions.
Best wishes and good luck to all.
1 Comments
This post is a short addition to the post done on March 5, 2017 (directly above). Regarding taking magnesium compounds as medication, it is apparently rare but possible to get too much magnesium, especially for people with certain risk factors. Consult with your doctor before taking magnesium compounds to be safe. Further information can be easily found by web searching key word phrases "magnesium overdose" and/or "magnesium overdose symptoms."
Best regards to all!
Best regards to all!
Hi
I have had these issues for over 3 months now. I was originally diagnosed with HSV1 back in July 2015. My outbreak seemed to be pretty tame compared to others. It quickly cleared up within the standard 10 day time frame. Since then I've had no further outbreaks and hasn't affected me at all thankfully. Around July/ August I had sex with a new girl.. After a day or so I began to feel a constant burning sensation at the tip of my penis. Followed by discharge and numbness. I have been cleared of all UTI's, water infections, bacteria infections and the standard STI's. I was prescribed medication for all of these but no help whatsoever! I also was put on an intense dose of the antiviral tablets. Since then I have began to research myself as to what it could be.. Postherpetic neuralgia seems to be the one that I am suffering from.. It's a deep burning sensation that never goes unless I'm in a hot bath. I seem to be getting a lot of thigh irritation like a deep itch and can definitely notice a change in my waterworks with finding it difficult to pass urine and have a weak flow. I have the feeling of needing to go to the toilet a lot! I am currently being treated for prostatitis with doxazosin however after a few days of relief it has come back. Plus I didn't even have my prostate checked.. I am terrified this is going to be my life now.. I am currently away from England so medical expenses are mounting up and I can't enjoy any part of my life anymore! The stigma surrounded by an issue such as this is horrible. I am going to see another private urologist tomorrow and am praying for some other answer than postherpetic neuralgia but even when mentioning it doctors always quickly dismiss it as they seem to know very little. Has anyone had any similar cases and had answers? I can't seem to find people who have this and have suffered with discharge as well as the coldness and the burning sensation. Surely neuralgia cannot cause a physical symptom such as discharge? Please help this feels like a bad dream!
I have had these issues for over 3 months now. I was originally diagnosed with HSV1 back in July 2015. My outbreak seemed to be pretty tame compared to others. It quickly cleared up within the standard 10 day time frame. Since then I've had no further outbreaks and hasn't affected me at all thankfully. Around July/ August I had sex with a new girl.. After a day or so I began to feel a constant burning sensation at the tip of my penis. Followed by discharge and numbness. I have been cleared of all UTI's, water infections, bacteria infections and the standard STI's. I was prescribed medication for all of these but no help whatsoever! I also was put on an intense dose of the antiviral tablets. Since then I have began to research myself as to what it could be.. Postherpetic neuralgia seems to be the one that I am suffering from.. It's a deep burning sensation that never goes unless I'm in a hot bath. I seem to be getting a lot of thigh irritation like a deep itch and can definitely notice a change in my waterworks with finding it difficult to pass urine and have a weak flow. I have the feeling of needing to go to the toilet a lot! I am currently being treated for prostatitis with doxazosin however after a few days of relief it has come back. Plus I didn't even have my prostate checked.. I am terrified this is going to be my life now.. I am currently away from England so medical expenses are mounting up and I can't enjoy any part of my life anymore! The stigma surrounded by an issue such as this is horrible. I am going to see another private urologist tomorrow and am praying for some other answer than postherpetic neuralgia but even when mentioning it doctors always quickly dismiss it as they seem to know very little. Has anyone had any similar cases and had answers? I can't seem to find people who have this and have suffered with discharge as well as the coldness and the burning sensation. Surely neuralgia cannot cause a physical symptom such as discharge? Please help this feels like a bad dream!
I share similar symptoms, especially the clammy groin bit. I'll add I must have infected my eye during that fateful first week because it feels like it has a sore. I suspected Herpes as well because there's a "ocular" strain I've read about.
This test has been out for over a year:
https://www.hhmi.org/news/your-viral-infection-history-single-drop-blood
Has anyone here, or, is there someone out there willing to add to the conversation been to a medical office where this test is administered?
And if so, did the results suggest anything out of the ordinary? You know, not necessarily an STD, but contagious or transmittable?
Seems like "scientists" don't exist in the medical field anymore, they all just want to treat you with the latest and greatest drugs and tell you it's all in your head.
Very frustrating..
This test has been out for over a year:
https://www.hhmi.org/news/your-viral-infection-history-single-drop-blood
Has anyone here, or, is there someone out there willing to add to the conversation been to a medical office where this test is administered?
And if so, did the results suggest anything out of the ordinary? You know, not necessarily an STD, but contagious or transmittable?
Seems like "scientists" don't exist in the medical field anymore, they all just want to treat you with the latest and greatest drugs and tell you it's all in your head.
Very frustrating..
guys try Oxycodone 10/325 it will help you a lot i know a friend who's having the same exact problem in the pelvic area.
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