Hi,
I Have also had this type of burning sensation for about 3 years... it was really bad back in 2011, and between 2012-2013 the discomfort was very mild, however, just recently the discomfort came back....I went to the doctor today, and this time I told my doctor this discomfort is not normal, and I asked many, many questions.... I did let him know I do get a lot of in-grown hairs and I do shave the area ( I have been since I was a teenager) any who, as soon as he looked at my genital area, my doctor said I have a mild case of folliculitis and prescribed me some antibiotic and a cream to apply if I get outbreaks... I hope this helps me because it ***** having the burning sensation... But between 2011 and now all I have done is keep the area cool, dry, wear loose clothing.... well I shall let you all know if the meds work...
Just got thyroid test results, all THS levels normal. I guess hair loss is due to stress from what I'm told. The fact that scalp tingles all over I'd making me think its fungal and I may be chasing a fungal infection like JSULL. I will keep you posted.
Thanks for the words of encouragement lovemistake. Best of luck with your procedure and Please keep us posted with your status.
A bit of good news with my symptoms is that most of the lower body aches have subsided. No more heel/back pain for now. The pains in the folds of groin area have subsided but still there if I think about it. Had biopsy done on a patch of raised skin (bump) on thigh. Dermatology results are eczema/dermatitis. Not what I was expecting at all. My biggest fear was HPV.
A bit of bad news.
Received urine/blood labs from urologist.
Holicobacter pylori positive
Chlamidia pneumonia >18.5 level
Loosing large amounts of hair on scalp. Not sure if its stress related or thyroid issues due to aching throught.
Still getting folliclelitis on inner thigh. Baby powder helping some.
Not sure what to treat first anymore. Don't want to take valtrex while taking antibiotics for pneumonia. Also, don't want to go to Dr with hair issue, he already thinks I should be on psychotic medication.
I have been following another thread that is extremely related but they have taken discussion to a higher level. Great read for all of us.
I am extremely concerned with a comment by a member by the name of Dammed02032012. He states that he transmitted the virus to his kids even after making an effort to keep his distance. Hope he replies to my question.
http://www.herpes-coldsores.com/messageforum/threads/for-everyone-who-has-had-negative-hsv-blood-test-results-but-positive-swabs.55689/page-28
Still waiting for something to swab. I will keep posting.
I'm sorry to read your list of symptoms Serg, as they are almost identical to my own, and I know what my own suffering has been like for the past several years. They have caused much dismay.
However, in many of the medical articles I have seen, which explain postherpetic neuralgia, it suggests that at the onset of viral symptoms, one should take the acyclovir-based drugs as soon as possible. This, according to research, is crucial to limiting the subsequent neuralgia that happens after viral activity.
I never did this because in the early days, I had no lesions to indicate herpes activation and went for several years before finally putting all the facts together to arrive at the conclusion. I was IgG positive after testing and then more recently found that it was specifically HSV1 (>3.5). I confirmed by HSV condition by self-treating with valacyclovir. I found that it reduced all of my symptoms, albeit briefly, and still continues to do so.
If it provides you with hope (and I certainly want to give you hope, rather than bad news), I have also read that in time, the postherpetic neuralgia reduces and disappears. In my case it has not done so, but I think my case is quite extreme. I have found that each time I suffered viral activity, subsequent nerve damage took place. If you can take acyclovir, or better still, the pro-drug valacyclovir, whenever you think you are about to see viral activity, then I think you should be able to overcome it in time.
I have just undergone four weeks of ozone therapy by blood autohemotherapy, together with daily injection of ozone gas into the dorsal ganglia region (where herpes resides), both in order to attempt to kill off the virus. It is too soon to say if it is working, but during my first few days' treatment, it helped an awful lot. After the first few days, some of my pain returned. I need to wait to see, and if necessary, continue treatment.
I wish you the best of luck. I have accumulated dozens of medical articles and scientific studies that confirm herpes simplex does not always remain dormant and in fact continually changes the nerve sensations. Therefore please contact me if I can be of help!
It's been 7 months since relations with female and still trying to diagnose possible same infection. Symptoms:
First month:
Severe lower back pain (not like usual citric )
Pinching pain on/in tip of foreskin
Sharp pain in left butt/hip bone that made me limp
Left heel bone pain that made it difficult to stand
Second month:
Small raise hard lump on pubic area near upper edge of hair line. Would not go away two weeks later, applied vinegar and immediately opened into a sore. (Not HPV)
Feeling of bug bites and needle stings on scrotum Third month:
Difficult to sit. A lot of butt bone pain
Random penis pains
Feeling of burning skin/stings on groin folds
Back pain/herl pain gone.
Irritated inner thigh
Tip of penis swelling and pain
Under arm aches/pains, not painful but sudden onset
Fourth month:
Irritated inner thigh cont
But bone pain cont
Fifth month:
But bone pain subsided mid month
Started feeling calf aches like dehydrated
Urethra started burning(again) with mild head irritation
No more under arm aches.
Sixth month:
Continue with mild urethra/head discomfort
Pain and discomforts on base of scrotum folds(very
noticeable) lasted all month.
Calf ache continues
Seventh month:
Groin fold pain/discomfort subside but occasionally
returns
Scrotum bites/stings/pinching returns (mild)
Urethra and head discomfort persists.
There has been tree Dermatologist, one urologist and three blood/urine analysis. HSV 1 pos 2.96 LGG at fifth month but had a cold sore on lip during blood sample collection.
The most frustrating thing is having to wait for diagnosis by swab during the outbreak that never comes. Had the small pimples here and there and on backside but dermos tell me it's foliclelitis.
at this point SHOULD I ASSUME I AM HSV1 gen Pos?
Thanks for the reply. It's good that you managed to recover from your HSV1. It sounds like it was a one-off effect from your initial exposure, whereas mine seems to have degenerated progressively over time. The most frustrating thing for me, is not finding medical practitioners who accept that HSV can cause my symptoms. The worst example of this has been when seeing infectious disease specialists and urologists. They both just regard it as a skin vesicle issue and nothing more. The urologist in Singapore told me it was "guilt", as you mentioned in your earlier post.
I actually took downloaded copies of case reports, showing Elsberg Syndrome and Herpes Radiculopathy etc. to my urologist and he replied that they are just single cases and aren't to be relied on. It's so frustrating that they won't educate themselves beyond their medical texts.
Presumably these case reports have been published by exceptional doctors in the past who have found patients' symptoms noteworthy and prepared the information for the benefit of others. Why, I wonder, don't we find those doctors in general practice? Whenever I visit them and want advice on what I can do to get over this, they just want to get rid of me.
This has left me no option but to self-treat myself. I am getting my pain and several other symptoms under control, finally. Valacyclovir is available here over-the-counter, so apart from the huge cost, that's no problem. However, this only resolves pain and stomach tension for a short time. The real benefit I'm finding, is from taking the following:
1. Tagamet - anti-acic medication which improves the immune system (off label). This has a noticeable effect minutes after taking it.
2. L-Lysine, several grams per day. This has more or less resolved my genital numbness.