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Penile pain, burning and itching genitals

I am a 28 year old male. The symptoms I am about to describe began suddenly around August 2005. At first they were chronic; lasting all the time for about 2 weeks, after which I would be symptom free for a month or so. Gradually over time, the period in which I sufferred the symptoms lengthened and the period for which I was symptom free shortnened, to the point where I would say for the last 9 months I have sufferred these symptoms 24 hours a day, 7 days a week.

My groin area constantly feels "clammy" and sticky, much like you might feel after a long run. My genitals are constantly itchy in various places on my penis, testicles and pubic area. When I sit down, I experience a burning / prickling feeling in my groin, buttocks and thighs. The feeling is constant but is not generally felt when standing up or lying down. Minimal alleviation from the burning feeling is gained if I sit on a donut shaped cushion, but it does not help much. I also experience sharp stabbing pains in my penis from time to time, which was in fact the very first symptom I felt when this all started happening.

More recently now I do not seem to have the same pressure when urinating and I can't seem to squeeze everything out like I used to. No matter how much I shake afterwards, a little more urine always seems to drip into my pants afterwards.

I saw a urologist very early on in the picture; he performed a cystoscopy and prostatic massage which did not show any abnormal results, however it was likely that when he performed this it was in between times where I was sufferring symptoms. I also took a couple of courses of Ciprofloxacin which did not help at all. I have also been checked, re-checked and cleared on any STDs. I should also mention that there are no visual symptoms; sores or rash etc.

I have seen a neurologist who has tested me to the limits of his field of expertise, including MRI, nerve conduction studies, a lumbar puncture and various blood tests. He was unable to find a neurological reason for my symptoms.

I am now going to seek a second opinion from a urologist given the progression of my symptoms over time. In the mean time, if anyone can relate to these symptoms and offer some kind of advice or guidance that would be much appreciated. I am sufferring from this 24 hours a day 7 days a week and it is destroying my quality of life. The most frustrating thing is that as yet no one has been able to give me a definitive diagnosis of what this is.

Please help
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Avatar universal
I have similar problems as everyone else. It started a couple of days after having sex. I experienced flu like symptoms for 5 days followed by itchy genitals, itchy legs,  left sided perineal pain, red bumps scattered around thighs and other symptoms. I've had two negative igg tests for herpes at 6 and 9 months post exposure and all kinds of other tests; Lyme, mono, STD, CBC, prostate, etc. and they all came back normal. I get weird zaps in my arms and legs which i'm guessing is nerve related. The sciatic leg and back pain has pretty much ruined my life. I used to jog and mountain bike and can no longer do that, and am struggling to get through days at work. Just when I seem to be feeling better I get run down and the symptoms come back again. I also think it's brought on by stress and I still say it's herpes, but with negative tests and atypical symptoms I'm hoping it's not, at this point I'd just like to know one way or the other. I just thought I'd share my story, if anyone has an answer to this please help.
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Avatar universal
Do you have any testicle pain ? Do you have any buttocks, legs pain ? for how long long the pain last ?

Thank you.
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Avatar universal
I have pain in my perineum on the left side, no real testicle pain. I have very bad buttocks, back and leg pain. It's pretty much constant, i've had weeks here and there where I felt good. This has been going on for a year.
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Avatar universal
Have u been see by any doctors ? Did you take WB test for herpes ? Xray ro check your lower back pain ?

Is the pain in buttock and legs ? ( like a burning )

Thank you.
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Avatar universal
I have had an x-raydone, no MRI. I was told my back looked ok. My last doctor seemed to think it was all in my head and we didn't seem to be getting anywhere, so I have an appointment with a different doctor in a few weeks. I was planning on taking a Herpeselect igg test this week which I've read was one of the best, I have not had a WB done. The pain initially started as a burning, dull type of pain in my left hip and outer thigh area. It eventually started happening in both legs, lower buttocks and lower back, some days I was walking with a limp. It seems to match sciatica description pretty well. Thanks.
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Avatar universal
Did you have any swab test for any rash or pimple or blister?
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