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Strange smell following me

I've posted same question on OCD board, cause my psychiatrist thought I was nut and obsessive, and people on that board really tried to help me(appreciate them) but nothing is solved yet and I'm so desperate I post here same question again,

It'll be a long post, would u plz spare some time to read it and help me?


1. I used to have IBS always, since infant. Every kind of IBS. But I never had any problem related with smell.
   I sometimes had body odor when I ate spicy food or the summer was too hot, but usually I've been O.k.
   UNTIL NOW.

2. some years ago, I stayed in a very hot and humid country, so I ate tons of cola and sweets to cool me down, usually i don't like sweet foods, but hot weather changed me.
    and I traveled so many places, had lots of stress.
    Since then, I encountered strange things happening around me; people looking at me puzzled, or 5 minutes after I entered a room the people in there all leave except me, or person sat next to me suddenly change seats to FAR away, or people around me bend their back and hide their faces like there is some fire smoke.
     but I had no idea and didn't care about that things, thinking I'm tired from the travel.

3. After i came back home, things became more noticeable.
   I became sooooo gassy. I am usually gassy person but this was crazy. I was gassy every five SECONDS. and smell was awful. I thought maybe this was the reason people avoided me and was disgusted of myself
   I tried everything to make me normal. Living on nearly only vegetables or fruits, lots of laxatives, or probiotics, I tried everything whatever named 'gut cure'.
   then my gas subsided and smell became manageable.

4. Then, MYSTERY THING started to happen.
    I cured my gas problem somehow but people reacted more furiously, like I am farting 24/7.
    i didn't fart, even if I did it involuntary, it wouldn't be for 24 hours. but people reacted like I smell 24/7.
    first couple of months i couldn't smell myself, but i started to notice random whiff of it.
    It was like dead animal, or rotten sewer, or really nasty fart smell, or just smell of my inside gut. I didn't know where the hell is that coming from.
    I was freaked out. Since I could smell my BO(?) I religiously tried everything to sanitize my gut.

5. about 2 years of trial made me better. the odor emitted from me subsided and people's reaction became less.
   I lived on nearly small portion of grains and lots of vegetable, and some fishes. No sugar, No junk.
   Strange thing is, though the smell become lessened, I vigorously started emit gas or odor through my entire body or pores.
   Even small bit of spicy food or smelly food like onion made me emit some terrible odor to FAR FAR AWAY.
   so people walking ahead 100 meters could smell me and turn around.
   and the smell became more like not HUMAN, it was like sewer or food itself or fecal matter still in my small intestine.
   and I was no more gassy. Gas just seeped out through my body. Not coming out through rear end. (sorry for being graphical)


6. My family or friends or Docs cannot smell me. When I confided this problem to them, one of my friends called me mental. My family and friends are all brutally honest and don't care much about my feelings, they are not lying.
Docs either couldn't smell me even when I could smell entire room is filled with my sewer smell. I know I'm not hallucinating because all patients in the waiting room was looking at me with anger and discomfort. I'm not ugly and I don't usually draw attention, their eyes were saying 'YOU SMELL TERRIBLE'.


7. I did many tests physically, all came out normal. So angered docs got tired of me and kicked me to psychiatrists.
   They can't smell me too. Just five minutes ago passengers in subway covered their nose and glared at me, my shrink just said 'It's in your head'.
    and they prescribed me several anti-depressants or sedatives.
    anti-depressants worsened my symptom, sedatives made me feel better and weakened symptoms, and anti-psychotics made symptom a bit better but side effect was so huge i quit them. Now i only take benzo to manage everyday life. (It doesn't clear the smell, but lessen the density)

8. It's been 5 years and i'm still living in nightmare.
    My family don't approve my problem and family budget became wreck, so my parents forced me to work in their store.
    I lost many customers at my shift. Many people glared at me or laughed at my face or frowned and never came back. Staffs working at my neighbor stores doesn't come anymore. I told this to mother but she denies denies denies, saying 'it is economic crisis'.
   What kind of economic crisis make customers frown and never come back to my store when we are lodged just next to their houses?!!!!!
   I gave up persuading my family and just force myself to go work, cause If I quit we'll have financial problem.
   I have a brother who is 'genuinely psychotic so my parents don't count on', he is nearly 40 but still live with my parents and doesn't work, doesn't socialize with anyone, addicted to online games, doesn't do house chores.
   So my parents depends on me, I can't just quit and become home-bound like my brother.
   While at the same, I'm losing my mother's customers because of my smell.
   Hell loop, isn't it?


9. It's been a long post with lousy grammar, thx for reading this.
    I just don't know what to do. I don't know what the hell is this. No ancient medicines describe this kind of things, no conventional medicine noticed this(though they are starting to notice a bit and named it olfactory reference syndrome)
    I always had IBS. and this seems to related to IBS. But even severe IBS patients don't usually have this.
    Before this symptom started, even when I had terrible diarrhea I didn't emit any odor.
    Now my body seems trying to emit odor no matter what I do. I tried every kind of supplements and tried several traditional medicines, took many many test, even went to psychiatrists. Nothing worked. Only xanax makes me feel a bit better(or make me numb), and being careful not to eat spicy thing works somehow.


10. Now I'm not a walking abomination for 24/7. Some days are good some days are bad. I honestly don't know what is actual trigger.
One day I don't have any odor so customers are so nice to me.(I'm rather good looking and people like my personality)
  then the next day i emit strange odor, customers stop smiling and become rigid face, and never come back.
  I don't know how this store still managed this far while I cleared out entire store with my smell.
  Xanax make the smell less frequent, vegetable or coffee makes the smell less naughty. so I'm basically living on switching xanax and coffee. (weird, isn't it?)
  I'm thinking one day I take xanax and next day have coffee. Taking only one of them doesn't work.

  
11. Really become long post, this is last paragraph. Today I think I lost another couple of customers. one of them even waved their hand to dishevel the odor. Some said 'what the smell is that....' under their breath. Some coughed or become grimace.
    I AM TIRED.
    I don't hope being respected or being liked anymore. I just wish people don't hate me or talk back behind me.
    I just want to die but thinking of my parents I can't.


thanks for reading.
Is there anyone who can help me?
I wish I was mental and everything was just hallucination.
I truly wish I were schizophrenia and I will trade this syndrome with cancer. I MEAN IT.


67 Responses
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Avatar universal
I had a stinking **** condition for past two years.i dont know if thats the same ibs but i had difficulty in holding feces and gas.it all happened after a 1 year long very stressfull condition.(i was preparing for a very competitive exam)

If you stay in stinky place for long you'll notice the smell fades. I think thats the reason why my family didnt notice the odour. I heard few  people complaining the odour.
I am writing this to share how i cope to this condition , you may use it as well.
Buy an ointment for piles.empty the ointment,what you need is the tube.after defecation wash anal area,fill the tube with water and squeez the water into the rectum.expel the water as in defecation.repeat this 4 to 5 times.the objective is to clean the rectum out of feces.by this way the smell will reduce well so that no one can notice the smell.
Make sure to keep the tube hygene by washing with soap.
Its a self discovered technique. I have been using this for two years. No side effect or infection found. Hope this will useful to you.
Never loss hope. Have a good life.
Helpful - 0
Avatar universal
Hi guys, i'm 14 years of age and sadly i'm still getting this problem. It only started last year and i'm pretty sure I have IBS. My parents, family and my friends all say that there isn't a smell and it led me to believe that I might've been schizophrenic or something. But I know that can't be true because people always try to avoid sitting next to me in class apart from my friends. People also laugh, and one time this particular girl kept going "Ew, what's that smell?" to mock me and embarrass me. They must think that i've pooed myself, and I sorta wish at this point someone in my class would generally ask why I smell so bad just so I can say it's my IBS. I had anxiety already, and this just made it worse. It's wrecked my life and I even told the counsellour about it, but again, she claimed she couldn't notice anything. I really need a cure because it makes me disgusted with myself, I don't exactly feel human and i've thought about suicide because of it. Right now i'm taking Probiotics for it for Holland and Barrett and they have 10,000 good bacteria in one of the capsules. However, it's my third week taking them now and they've yet to work. They've gotten rid of my stomach cramps from drinking energy drinks but that's about it. I'm not sure how long they're meant to take to work but it would be fantastic if anyone could tell me if they knew. I feel as if what triggered my IBS and the bad odour was cannabis, I had started smoking it last year in the summer and that's about when it started to occur. I thought hardly any of it at the time. Then I continued to smoke it, thinking there was no problem. Now when I smoke it, the smell is REALLY bad so I had to stop. I'll let you all know if the Probiotics end up working. For now i'm just going to have to make due since I only have two weeks left of school until the summer holidays, though the stench of it has gotten worse very recently and I think it's because of the heat. I really do symphasise with any of you going through this, please remember none of this if your fault and if anything does say anything, you're not the one to blame for this problem. We're all human, and illness or not, you still mean a lot.
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Avatar universal
Wow maybe it is a prolapse :) I hope I can get cured of this its destroying my life
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Avatar universal
It's sexual abuse !!! No cure
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Avatar universal
I had the SAME exact problems from the IBS to the same smell that my doctors or family apparently couldn't smell. High school was the worst :/ But after searching eveywhere and visiting 8 DIFFERENT doctors, I came across a post describing my exact symptoms. The guy in it said he was diagnosed with mucosal prolapse which explained his smell. I did more research on rectal prolapse and all the symptoms matched up. I went to 2 other doctors before I found a colon and rectal doctor that pretty much confirmed it. I had to do an MRI that basically showed I had rectocele which is basically a prolapse so I was right. Turns out there is treatment for this that'll get rid of the embarrassing odor right away. You should definetly find a good colorectal doctor and tell them you think you have a rectal prolapse. Good luck!
Helpful - 2
Avatar universal
I have a similar problem we should have lunch. Probably not possible... damn.  I shower more often have cleanest clothes it still prevents employment its demoralizing on duty . u guys ever try toothpaste on rectum helps for a little bit.ill share that my problem makes people a little sick.  
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Avatar universal
OH MY GOD you have exactly the same problem as I do I'm a 19yr old male and have suffered this for around about 7 months it's as if it happened one day and won't go away I was perfectly normal/ happy before this and now it's completely ruined my life I've lost all my friends as they think I'm mad as I've asked the countless times if I smell and they all say no but at random times I would get 'it smells like **** in here' or rotting flesh on one occasion I too worked in a shop and had the exact same experiences, I've now moved away and got rid of a lot of stress in my life and turned vegan it has notcibly calmed down but not gone by a long shot I can't smell it myself but I can pick up on strangers cues. Thought it could be a nasal infection but realised the sheer amount of people the have commented on it or acted when they have smelt it please anyone if there is a cure or even diagnosis I'd be over the moon this has made me turn from a very sociable young adult into a wreck that is slowly getting over suicidle thoughts I can't say if these thoughts will go away if I have no cure.
Helpful - 0
Avatar universal
I don't know if you're still here but I have the same thing you have and have had it for Three years.its horrible all I hear is "why does it smell like ****" and people sniffing for some reason. When it first happened I barley noticed it just people sniffing for some reason then one day someone came up to me and told me. After that I was worried and told my parents they told me that I was paranoid or just worried and to stop thinking about it same with my useless doctor. A few months after that I lost a lot of my friends from this stupid ******* problem. think what caused it was eating spicy food because I love it but I'm not sure and at this point I don't care. It's been happening so long that I'm used to it but not in a good way just like I accept that it has to be like this its terrible. I'm a freshman and the same stuff is still happening every single day. If this stuff ever Happens to you go tell someone that will actually listen and try to fix it so you don't ruin your life like I did.
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Avatar universal
I have the same problem too. I am going to try colloidal silver and see if that works and I am also going to try colon hydrotheropy
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Avatar universal
I have the same problem, *** female, what i do is take bubble baths and while I'm laying back in the tub i push water I'm my vagina, and let it flow out, yu can also try putting a little apple cider vinegar in the water. That really help me out a whole lot. I was very self conscious of the smell as well but since I've been just letting the water flow up my vagina. I don't smell anything
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Avatar universal
I have same thing and I'm at my wits end. Have you found anything to help,lessen the symptoms?
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Avatar universal
You could try Chlorophyll. Also, you may want to consider that maybe you're being too self-conscious. I'm not saying that you don't have an odor, but maybe you're the only one to actually notice it because the odor is coming from the inside out. If that makes any sense. Also, you mentioned that when you don't have an odor people react differently to you than when you do have an odor. That could be because, subconsciously, when you're feeling like you smell horrible, you may be acting self-consciously or oddly with people; whereas, when you are not smelling yourself, you are feeling more confident, and you probably aren't giving off any weird or uncomfortable vibes. Also, you may want to consider when do you start to smell these odors? Is it when you're by yourself or is it out in public? Does your body give off this odor when you are relaxed, or does it give off this odor when you are uncomfortable? The reason why you want to ask yourself these kinds of questions is because there's a reason why your family and friends don't smell the odor that you're referring to. So, basically, my guesses are: 1) the smell exists enough for you to smell; however, it is not as bad as it may seem. Which is why doctors and loved ones tell you they don't smell anything. However, because you can smell this odor, you are super self-conscious which is making you act in an odd way to other people (customers, etc). 2) You're body gives off this odor when you are being self-conscious or uncomfortable, which is why none of your loved ones actually smelled it because you are fine/comfortable with them, and when around other people you get self-conscious or uncomfortable, and your body is giving off a really bad odor that others (customers, etc) can smell.  Hope this helps!
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Avatar universal
Try refaximin tablet 550mg. 2 times a day for 10 days. It will kill gut becteria.
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Avatar universal
Colloidal silver will help...research it and be sure to take in lots of fiber and water. It will help to rid the body of the odor causing ailment.
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Avatar universal
I have the same problem since i was 14. Has anyone tried nexium? Ive been feeling a little more comfortable since I been taking it although i know its doesn't cure the problem. But i feel a little safer when it comes to eating food. I havent had as many episodes since i been taking nexium. Ive been feeling a little more confidence since i been using it. I urge you to try it to see how hit works for you. Good luck.
Helpful - 0
Avatar universal
I have all of the identical symptoms of original poster also, and yes...I can often smell the smell coming from my nose, I don't even know how to describe the smell, it is putrid, maybe something like rotting fish combined with the smell of the pus from a boil that cats get I have never smelt anything like it; I am a 65 year old female and use to notice it occasionally when I was a teenager, especially if I was in a stressful situation. I have always had a very touchy digestive system and did suffer from IBS in my younger years. I now suffer from gastritis and Barrett's Esophagus so I am guessing it has something to do with the stomach not digesting food correctly. I have tried every diet on earth I think, a multitude of different vitamins, exercising, maintaining a healthy weight, you name it I have tried it...but I have discovered being constipated as I am more often than not, definitely makes it worse and definitely being stressed out eg: unfamiliar situations , exams, tests, confrontation and anger all make it much worse. It is absolutely shocking the affect this condition has on one's life and my heart goes out to each and every one of you who are battling this monster. I will keep experimenting and if I should manage to discover the answer you can be sure I will be straight back to let everyone know, take care good people and God Bless each and every one of you.
Helpful - 1
Avatar universal
Okay people, i have this problem that the original poster described perfectly for at least 13 years from when i was 14, tried everything and i can tell you the following:
- It is not in your head, you are not insane.
- Don't try alternative **** that's not based on science, its all ******** and they just take your money without any or with little results.
- Don't try to "detox" its ********.
- Don't do enemas it will help in the sort run but will make it worse on the long run.
- Alkaline diet is ******** our body's defense is acid!
- Try to eat only proteins and fats. No carbs at all. I suggest nuts and chicken meat with vegetables(green peas, carrot zucchini, paprika, eggplant, little onion).
- Don't even think about alcoholic drinks!
- Avoid all sugars especially Fructose(fruits)! Honey is sugar!
- Avoid POTATO, Broccoli, Kale, Cabbage, Cauliflower, Tomato, Fresh Garlic, Eggs, Beans, Mushrooms, Soy.
- Avoid sugar-alcohols(Polyols). They are in toothpaste too.
- Only sweeteners that are allowed: Sodium-cyclamate, Sucralose and Acesulfame K.
-  Avoid anything that is made of milk or contains milk.
-  Watch out for products that contain dextrose, soy, or modified starch.
-  Always read every label on products.
-  Some probiotics may help, but some of them may even make it a lot worse.
- There is only one med that made me almost completely free of symptoms it is called Fluconazole. Though I cannot get any more of it because my doctor thinks I have a mental problem like some of you wrote.
- It is contagious, I have it confirmed, though it takes years for others to develop the symptoms. It spreads with air and touch/saliva. I made sick at least 12 people now, they were all normal ppl and now have almost all my symptoms.
Good luck not killing yourself, Im not sure I will not do it.
Helpful - 0
4 Comments
Oh and one more thing, try to test if the smell comes from your nose! I bet some of you will be surprised!
Does anybody live in Washington? Maybe we can hook up and help each other.... The truth hurts but I don't mind helping find alternative s. Good luck if not. Let me know.
Im from hungary. Sadly.
I second the use of a strong probiotic. Its possible that you have partially digested food sitting in your colon. Avoid red meat and any greasy food first. Chew at least 25 times per bite and drink a half glass of alkaline water with every meal. Take probiotic before bed. There are some gentle tummy massage techniques used on babies that you could do on yourself as well.
Avatar universal
Hey am sorry for you but have my contact if you want help may be i can help whrite me at ***@**** and remind me about this i can have some discusion with you may be it would help.
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Avatar universal
all of those things happened to me too.
literally from 1-11
i was in highschool when this started
and imagine all the bullying i got during those times
even my own best friend joined in with the bullying
i couldn't even believe how i manage to went through all that
without pursuing suicide
it was never about the endless farting but the STIGMA itself...
people are really cruel sometimes
there were harsh comments thrown at me everywhere
i've been called walking toilet, poop girl, **** and diaper lady
i isolated myself from everyone since then and sadly,
i'll be 26 this year and i'm still unemployed because of this problem
my parents keep asking me what was wrong with me
and what would i do with my life if i keep on living like a hermit
and whenever i told them the reason
they just keep ignoring me like they don't believe me
they said it's all in my head
there were times when i wanted to die because of this
but i can't...i love my parents so much...i can't do that to them

i really related when you said " I will trade this syndrome with cancer. I MEAN IT. " because at least then, there are chances for cure...

Helpful - 0
1 Comments
Colloidal silver will help...research it.
Avatar universal
I have had the same thing happening to me. The odir was like a mix of tarnished silver or copper with an old onion odor. Severe cramping, cold sweats, and vomiting were a common thing with every morning BM. I felt lethargic, had night sweats, anxiety was unmanagable and thought I was dying. I began to read about bowel dosorders being linked to antibiotic and steriod use. I realized this all began because I had four courses of prednisone very close together. It killed all beneficial gut flora and Candida Albicans took over. The moment I began taking FloraStor, sacromyces boullardi gave me die off symptoms. It is the only probiotic that worked for it. I still have some symptoms when I skip a couple days but the anxiety attacks, night sweats, gut cramping, cold sweats, gas, heart palpitations, and foul odor have dissipated. Limit carbs, sugar, and junkfood, take S.Boulardi, fiber, food grade oregano or lavender oil and Molybdenum supplements with hot showers to help with die off symptoms. It ***** but its worth it to feel normal again. Good luck!!
Helpful - 0
Avatar universal
Please take it easy...I have felt so desperate with this same issue and I understand how your quality of life is suffering, I really do.  Please read my post a few minutes ago and reply back to me if you have any questions.
Mandatory diet adjustments:  stop all yeast, sugar and dairy.  Google Candida cleanse or Candida and read up on how to work to get your body's bacteria levels back in balance.  Stick to it and don't give up.  The more you kill off the bad bacteria through diet changes and through detoxing (foot soaks and bath sweats), the more manageable it becomes.  Hang in there and write anytime you need support.
Helpful - 0
Avatar universal
45 and have been having this same exact problem (more acutely the past 6 mos or so).  No other person admits or seems to realize it, but it definitely smells like something is rancid, leaking out of my pores and especially through my feet.  I have IBS and my only symptom of that is a pain in my right lower abdomen.  Drs treat me like this is a mental case, not a bodily malfunction.  SO FRUSTRATING.  I am now eating to kill off Candida in my digestive system, eating no yeast, sugar or dairy.  I pair this with nightly foot soaks (epson salt, baking soda, bragg's apple cider vinegar and fresh ground ginger < most important ingredient, I think).  I also do weekly "sweat baths" for 20 mins (same ingredients, but x10, b/c its in a bathtub and I'm trying to get my whole body detox'd).  I submerge under the water up to my neck for as long as possible in as hot of water as possible and then when I get out, I cover up head to toe in a robe and towels to prolong the sweat for another 30-40 minutes.  These foot soaks and bath sweats are a life saver, while I am working to kill off the bad bacteria (Candida) in my system.  I do take supplements also, but that is a newer development and I've not realized the benefits of doing so just yet.

My heart goes out to you and I wish you'd post an update to those of us who empathize with you.  I appreciate reading everyone else's thoughts, ideas and concerns.
Helpful - 0
6897718 tn?1386145496
Are you still having this problem?I need help really bad
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Avatar universal
Hey ...are there ppl around still suffering from this? Ive started therapy sincemy fam and bf say they dont smellanything &amp; so itmust all be in my head,but Im not so sure. In fact Im starting to believe my anxiety &amp; paranoia all stem from this horrible problem. Im trying to work up the nerve to go back to my doc&#x27;s, taking notes on all my symptoms and possible causes and solutions because if they just tell me Im crazy again Im actually going to kill myself. This isnt living...
Helpful - 0
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