Hi Selma. Well they were thinking epilepsy but the EEG didn’t show that. However, I’ve had this ongoing leak that no one could seem to pinpoint and finally got discovered with the help of my amazing neurologist. It’s at the upper thoracic level and after looking at my eyes he noticed I have high icp which probably caused the leak.
Getting scheduled for a targeted blood patch soon with the hope that it will seal it. Then a nice long round of diamox again.
Ahh chiari. The gift that keeps on giving....
No one? Come one someone must have done something for Chiari awareness month....