Sitting here having PVC's and PAC's one after another!!!

[Sunshine47]

Hey guys, I am having a pity party. I have had it with these stupid beats. I am worn out with it and if I could talk the Doc into it I would go right now to have my 2nd ablation. I want to be free again. I am getting on everyones nerves at my house and I  am getting on my own nerves. I would love to have the past 6 years back. Is that being greedy? I can't understand what started them up again. I know that the doc said that they could be new troubled spots but are they going to keep continuing to come back time and time again? I have lost 13 pounds and have given up everything that I know of that have flared them off in the past. I barely eat, I barley leave the house for personal time, I hate to drive now. I am a WRECK!!!!!! I want my life BACK!!!!!!!!!!!!!! I cry all the time, I am scared all the time, I hate this type of life. I am usually a fun, outgoing, hardworking person. Now I feel like I have laid down and given up. My 99 year old Grandma has more life in her than I do. I am not scheduled until the first of Feb. for my workup. I don't think I can wait. I am sitting here strongly thinking about going to the ER and asking them to admit me so that I can get it over with. I a feed up, at wits end. I want peace. I know that I this won't hurt you but it is so debilitating. I am SCREAMMMMMINNNNGGGGG now!!!! Sorry guys I had to get that out of my system. Keep praying for me and I will let you all know what I decide to do. If it weren't for you all I would be motified. You all that have commented me back have been wonderful hope and strength for me. My quality of life has went from spectacular to pathetic. Well I am going to go to my room and continue my pity party there. Take care guys and thanks for listening.
Karen in Tennessee and wishing for a miracle.

[Mom2four85]

When I first went in, my pcp now told me he thought I had valve damage from Phentermine which was prescribed to me by a physician in one of the clinic's satellite offices.  He said he was appalled that a doctor of his stature (30 years) had signed off on my EKG & files.  He looked over everything and said he would "act like he didn't see the EKG" but advised me to go outside of the clinic for a second opinion & "do something about this".

He sent me to a cardiologist in their clinic affiliation so he would have full say so over my case & file.  When I went back to see him this past Friday he said "they say you don't have any valve damage or heart damage"  which he replied, "hmmm interesting I'm rarely ever wrong" lol.  He was an ER doctor for over 10 years and did diagnostics alot he said, and he's just the type of person you feel you can trust when you meet him.

What are they not telling me I wonder and that's why I want an opinion outside of this medical clinic and affiliation.  Maybe I'm just being overly paranoid with the problems I've had with doctors in the past 10-15 years, I really hope that's the case.

Whether it's 1,000, 10,000 or 50,000 PVC's,  extra beats, or just the feeling of not being able to breathe, none of this is comfortable.   I can't imagine the frustration people go through if a doctor tells them there's nothing wrong and nothing to worry about - I'd like those doctors to have to suffer through what we're all going through and then say it's nothing.

I'm actually looking forward to seeing a new EP and see what she says about the chances ablation will work, or if that's what I need.

Please post and let me know how your holter goes & what they say.

[catspeaks]

Oh good, I'm glad you took an aggressive approach to your doctor's lack of response and concern!!  Who cares what "toes" we step on when it comes to our health and well being!  It's amazing what a few little words can do to speed up the process :).
Yes, I did a lot of reading on the ablation, but usually there is some damage there, maybe something that wasn't picked up on the tests.  In any event, I'm glad you're going for another opinion and I hope this takes care of all your extra beats, etc.  It seems to work in so many cases similar to yours.  Unless someone has experienced this, they are clueless as to how much it can control our every movement, literally.  Please keep me posted, I am truly interested and concerned.
I am going this morning for my event monitor..hopefully they can give me some answers, albeit, it is not nearly like yours, but to each of us, it is our own personal hell that we live through and fight to get out of.  We will win this battle though!

[Mom2four85]

Thanks Sami - from what I've read and drs told me they have a 90% success rate - for the "normal abnormal" beats with ablation - I believe the number he quoted me was 6 -8000.  Mine are outrageous and he said he had never heard of anyone having this many and gave me about 40% but then I may have to have it redone.

I've had this rate for 6 mths - 1 year at these rates that I can recall,  I have NO heart damage whatsoever even though. no heart damage they know of yet until they do surgery :)  they said my heart is "structurally normal", which Im still in shock over.

I have surgery scheduled for next week, but I "stepped on the doctor's toes" by going for a second opinion and his office never called back to confirm the time and set up my tilt table test & pre-surgery bloodwork :(

I've had a heck of a time getting their office to forward my files to the other EP for an evaluation or for them to send them to me.  I finally called and told them if it wasn't sent within the business day,  I was going to file a formal complaint with my insurance co.; I got my records release within 2 min! [grin]

[catspeaks]

From what I read about cardiac ablation, it seems like it has a high success rate.  Is it true that this is done because a part of the heart is damaged?  Sorry, I'm learning as I go along and feel so bad that you're living in the constant state of extra beats.  Is the procedure scheduled or are you going for another opinion.  I think too many doctors write off PVC's as "nothing" to be concerned about.
Keeping you in my thoughts,
Sami

[Mom2four85]

wow glad someone bumped this thread in 2009, or I may have never found it with so much to read & absorb.

For me this is literally the case; these won't go away  - I have had them 24/7; every minute of every day  now for 6 months to a year now.    54,000 EXTRA beats on my holter test - I'm sure it's higher on a "bad" day.

Fatigue, breathlessness, chest pains, palpatations, dizziness, fainting, blackouts, swelling, skipped/missed beats, my throat feels "clogged" from my chest up and I can never lay on my back, headaches (sleep apnea maybe?)

They have made my life miserable and I want my "normal" life back like most of you.  I want to be able to go to the zoo again, walk, run & "play" with my children, without feeling like I'm going to have a heart attack or die at age 42.

I knew something was wrong but had no clue what it was until recently.  Knowing that I have nothing wrong "structurally" was a relief.  The PVC's every 3rd heartbeat (Bigeminy) all day all night is driving me crazy,  I have  PVC's ,VT, SVT's .   I'm told if I don't have ablation I will have heart failure and heart attacks, that just stopped me in our tracks.

No one knows how I feel though, my husband  does not understood what I have been going through, he's never sick even with a cold.  I feel he really thought I was "faking" until the cardiologist told us and sent me to an EP.  Now he feels so bad and cried as he put his head on my chest and told me I had to stick to our contract I still had 40 years left together.  
My s-i-l has 1 run a year on the normal and can't believe I have them all the time.  My f-i-l has major heart problems and an icd so he knows part of what I go through but his are once a year or so also.

Just talking about it has helped alot this past week, I'm still getting answers through this whirlwind of craziness and still have so many questions.

I wish my PcP would have paid attention to my EKG in April 2007, it showed frequent PVC's  but I didn't complain of anything so he just said eh nothing is wrong...well he was terribly mistaken according to the Cardiologist & EP - "any doctor worth his salt" should have picked up on those details lol

[marshaldillon]

I was pleased to see so many people in the thread put their trust in the Lord. I have been posting on here for a while and have never interjected religion, but hey, it helps. I pray regularly and put my faith in Jesus. He will provide the strength you need. When you get down, read the book of Romans...anywhere in there. God Bless in the future.

[SassyLassie]

I have been reading all the posts in this thread, and I swear, they all sound like me. Talk about crying, man, that is all I do and I can sure relate to all the fears, etc that everyone is experiencing. I have both books by Claire Weekes, they are awesome, I wore one out carrying it around so much and reading it. I used to be lots better at practicing what she taught, but now, I am awful, my anxiety just runs away.

My post will bump this excellent thread to the top, it will be so helpful for newer members to read too.

I hope all that have posted on this thread are doing well and better.
God bless you.
Hugs
Susie

[Sunshine47]

Just wanted to thank everyone for keeping this thread going. I think that it is awesome. I just couldn;t wait to get home to see my responses and others. I think it is great that it has lasted this long. I love you guys and all your helpful advice. Take care and God Bless you all.
Big hugs from Tennessee
Karen

[Sunshine47]

Hey you. Sorry it took so long to get back to you but I AM FEELING LOW. I never worry about my heart rate just my rhythm. Strange huh?I wish we lived closer to each other too. I love hugs and lots of them. I get my monitor tomorrow. I am just thrilled. I actually am scared, I don't know why. I wish I had an answer. I guess we both get to go the doc tomorrow. Hey keep me posted. I will you too.Love you my special friend.God Bless YOU!!!
Karen

[WvMomof3]

Hey Hun...I see u had a bad day like me yesterday...I wish we lived closer...cause sometimes when I am feeling that low...I just need a *hugg* and maybe u do too...I don't think my depression/anxiety meds are working anymore...I have been taking Zoloft for 8 years now and I just don't think it is as effective as it used to be...I go to the dr on the 5th for my 2nd opinion and I am going to ask about a change for that...I haven't felt a hop, skip, or jump...well I don't think I have...since Feb 20th...I am not really sure anymore what I am feeling...I just know that I sit here scared to death waiting for it to happen and I know that is NO way to live...I had to lol when I seen what u said about taking your pulse...my fingers are permanently attached to my wrist and I keep a stop watch with me at all times to take my pulse...Pathetic...am I not...lol...well...I guess I better try to do something today...Hope to talk to u soon...God Bless...Love ya...***Huggssss****

[Sunshine47]

Well it is midnight and I am lying here having my DEMONS keeping me awake. I have to
work tomorrow but they don't care.I am getting ready to snuggle with my hubby and see if he can relax me enough to make me fall asleep. I hope that you guys are having a restful nights sleep. I will talk to u tomorrow. Much love and lots of peace. God bless each of you. I have battled these things all day. I kept going though to see if I could keep my mind occupied. Helped some but I still had it in the back of my mind. My son came and prayed with me earlier so maybe I can relax and be ready to go to the old grind tomorrow. I wish it was time for vacation.
Love you all,
Karen

[Thinline]

Thanks Karen.  I'm pleased you did what you felt best and that was to stay in bed.  My little one keeps me going.  You might read what I posted this morning, it looks like my marriage is about to break down, and its come as a huge shock to me.  I had no idea this was coming and its hit me like a ton of bricks.  My husband says I've made our lives dull and boring and he can't stand it anymore.  Sadly I can do absolutely nothing about it.  Its not because I don't want to do things, it's because I am unable to thanks to my health problems.  Never mind that bit about "in sickness and in health...".

To answer your questions, yes I was born in South Africa in a small town called Warmbaths, named after the natural springs in the area, which are hot and promote good health (maybe I did not swim in the water enough as a kid).  I do have an accent, but because I'm english speaking it isn't as strong as if I was afrikaans are from a black background.  Many american people think our accent is australian.  Here in SA we do say barefoot and pregnant ha ha.

We have such a great country with so much potential, but sadly I see it sliding badly.  Sometimes I wish we could leave here because of the crime, but that is not going to happen.

Keep well.

[Sunshine47]

Thanks for the advice. I am keeping a diary. I try to write positive things down and stay away from the negative. I have had a terrible day to day but I tried to fight it and I took your advice and stayed in the bed all day. That is where I felt the best. I am glad to have a friend like you even if you are so far away. You are always close to my thoughts. I keep prayng for your recovery. You are a special person. Are you orginally from Africa? I bet you have a beautiful accent. I do.. I have a hillbilly one. LOL. What they say about Southern girls is not true though we don't say barefoot and pregnant. How is your precious little one today? I told my co-workers about the hat. They thought that it was precious. I did too. Thanks for your friendship. Keep those prayes coming. God Bless you and your family and I hoep that you get better everyday.
Karen

[Sunshine47]

Hey you!!
You should be proud that you haven't had trouble since the 20th. Isn't it funny that we can name the exact time and date since it last happens? Now that it hasn't happened in a while would be a good time to try to focus on something that you enjoy. Maybe if you can just say hey I haven't had a flip in a while and so what if I do I know that it isn't going to hurt me. Do you constantly feel your pulse? That is my problem. I should just take some super glue and glue my fingers to my neck or wrist. LOL. Maybe it is gone forever, I have been praying for you alot. God works in mysterious ways. If he heals one all the prayers that have been sent up will not have been in vain. Not that I ever think that a prayer is in vain it is that God answers in his own time and his own way. I learned that the hard way.When my son's fiance' passed away I was so angry and so upset and then I got angry at my son because he moved on.. I couldn't understand why or how he could forget so quick but that was not it at all. He just dealed different. I would not even let his g/f in  my house and all I was doing was driving a wedge between us, I prayed to God everyday that he would get rid of her but instead he got closer and closer to her. I then decided that I needed to do the same. God lead me to do the right thing to keep peace with my son and now she is part of us, Not like Savannah.. we can never replace her but I am accepting it alot better now. So I have had to turn it over and let happen whatever happens. The same as my heart. I feel so scared and sometimes when I have bad episodes today I feel like calling it quits and quit putting my family through my PAIN! Then I think that would just hurt lots of people and I have faith that things will get better. I feel like a NUT sometimes but my husband is helping me. He keeps telling me to be patient. I get angry sometimes when people tell me that because it is easy for them to say that because it isn't happening to them. I have to step back and say okay I am going to do this with the help of my Lord. I can't give up. I want to get better. By the way your venting doesn't bother me at all. I love to talk to you. You are my friend and that is what friends are for. I love ya girl. Big Huggggggsssss to you too
Karen

[WvMomof3]

Hey Hun...Glad u posted today...I was getting a little worried about u...I hope your day got better and u were able to enjoy it some...we took the boys to the mall for a bit...I wish I could enjoy it Karen...but I am still scared to death...I am constantly waiting for my heart to flutter...Will this ever get any better?....It is a horrible way to live...I haven't felt it skip since the 20th of Feb...but I know it is only a matter of time before it does...which in turn scares me more...because I will think they are gone and BAM...here they come again to prove to me that I am never going to get over this...Sigh...If not for God's grace...I would be in a nut house I am sure....Ty for listening to me vent...once again...Love ya my Friend...*Huggsss*

[Sunshine47]

I hung out with the family last night and then the old heart started doing its ritual dance and I had to go to bed. So that is why I wasn't on. I am so tired of no fun and all sick all the time, I am working on a plan with the doc. So soon I hope that I can go out and play with no worries.I woke up this morning with the beast going off in my body. I have tried to ingnore it so that it will go away but no luck yet. How about yourself sweety? Ihope that your day is going well. I am praying so hard for relief for all of us. I am going to beat this DEMON. I have faith and lots of it. I hope that you have a wonderful day filled with peace. God Bless you my new found friend. I really care. Hugs and lots of them to you. Love ya too muchly. <3

[WvMomof3]

Hey Hun...Missed seeing a post from u today...Hope all is well with u and u have a great night...Hop, Skip, and Jump FREEEEEE....God Bless...Love ya...(((Huggssss)))

[Thinline]

Hey Karen.  I'm still trying to decide if this news is good or bad.  The major thing here is that your new doctor is obviously very thorough and is not keen to rush blindly into anything if she feels there might be something different going on which could be treated in a different way.  As frustrating as this wait is, I think its really a good plan of action on your doc's behalf, and she probably has some inkling of whats really going on and is doing this to confirm her feeling.  Perhaps when your doc left he actually did you a favour, becaue a different doc will look on things in a different way and might pick something up the other guy missed.  Often I think my cardio knows me too well and doesn't really pay enough attention.  I guess only time will tell, but since you have a whole nother month to wait now, please try be positive.  

I know what a hard time you have been having, but I've been thinking about how down in the dumps you are and what any of us here can try to suggest to make you feel better.  I'm not talking about huge life changes here, just little things.  I have three suggestions to try perk you up:

1. Think of something good and positive about yourself every day and write it down in a journal (anything goes here, it could be about your kind heart and how you have helped so many people, it could be something about your body that you are proud of - maybe you have a gorgeous butt or boobs or stunning hair - whatever, write it down and then one day when you are feeling very bad you can go back and read it.

2.  Think of something a member of your family has said or done lately which has made you feel special and loved - a good start would be the mail from your son.  Write that down too and go back and read it when you need to.

3.  Do something each day that you love doing, whether it's sitting outside and listening to the birds sing, or watch rain through the window, read something silly that you've always wanted to but didn't do because it was too silly, look on the web for a joke until you find one that really gets you giggling.

I hope you give one or more of these a try and it helps you feel better and cope better.  I'm sure lots of people have other suggestions for you, and I think any suggestions anyone makes will help everyone else here who feels angry and fed up with life.

Sending you a hug all the way from South Africa!

[Sunshine47]

Thanks for the words of wisdom. I realize the more that I stress over it the more frequent they occur. I can't get them off my mind. I have thought about going to a hypnotic session to see if that will help. I am willing to try anything at this point. How many jumps have you had in a day? I must admit that I am guilty too. I to have checked my pulse while with my husband also. I don't want it to get out of whack in the middle of an intimate moment. I live on prayer. I bet God gets so tired of me calling up on him, but I just can't help it. I beg sometimes to make it beat right. I hope that the docs can fix me up so when we go to the beach that I can enjoy my family and my time away from all my problems. Thanks for the comment. I think that this is the first time that we have commented each other. Please comment anytime. I have made so many special friends on here from this thread that it is awesome. God Bless and I am so glad that you have the power of mind over matter. Have a great night.
Karen

[Sunshine47]

Thank you my wonderful friend for all the prayers. You are wonderful. I can never tell you just how much it means to me. I get my nerve up and then I get told that it might not be that at all. I pray for you all the time too. I hate it to when others say you are alright. If that is true why don't I feel alright? You are what a true friend is all about. I will keep you up on the latest. I never can mention that I am feeling well because just as sure as I do I will get all bent out of shape. So when somebody says how do you feel and I haven't felt any bumps I say SHHHHHH! They know that means she is okay but be quiet. LOL. I get my monitor the 5th. A whole month of wearing it, YUCK!!! Oh well I will do what ever it takes. I love you girl. Hope you keep having good days, God works miracles. Sleep tight.

[ssmooth]

my pacs were allmost gone for a week but they just came back probablly because i caught a bad cold and im weak. i realize now that the less i let them bother me the less they occur.they are really bad the more we stress over them. they are harmless.over half of us have them and a few of us poor souls notice them. best way to cure is to ignore.medicnes to supress them are can be harmfull where to ignore has no harm whatsoever. they will only hurt our minds. think of that great saying


I WASTED A LOT OF MY LIFE WORRIYNG ABOUT THINGS THAT NEVER HAPPENED.
i know far to well easier said than done but ive been there. checked pulse every five minutes.5emergency visits.6ecgs.even checked pulse while making love to wife.almost lost my mind. all invain. just made them worse.  good luck all and may god be with you

[WvMomof3]

Sigh...I had been waiting all day to hear from u...lol...I was worried to death...I was even praying for u in the car with my husband today...I am sorry they are putting u off...but I hope they find all the answers and do the right thing to heal u...I have been feeling pretty good the last couple of days and I have realized...once I calm down...things don't seem so bad...I try to focus on the good that God has done in my life and not on the negative...but...OH...How I HATE to hear someone say...u are fine...nothing to worry about...I want to just scream and say...are u INSANE...lol...Anyways...Hope u rest well tonight...Talk to u soon...Love ya My Friend *Smile*....

[Sunshine47]

Well just got back from my Doctor and the ablation is off for at least another month. My new Doctor feels that my first ablation was such a success that she does not believe that I am experiencing the same thing. So I get to wear a wonderful Loop monitor for a month so she can witness first hand my episodes. She feels that my success rate was 98 percent according to my old docs findings. She says that there are several other things that factor into this. One being sleep apnea, and menopause. She feels I need another sleep test. So I have been scheduled for that again.I couldn't get my monitor today because they did not have the correct one to hook me up to. I go back on the 5th. She did and EKG which was perfect. No flips or flops. Seems to always be that way when I go to the doc after complaining. Just like my kids when they were little. They would be so sick and I would take them to the doc and they would be up running around making me look like I was an overprotective mother. I think that when I go to the Doc that I feel safe for some reason. Anyway I had lost 23 pounds. I was ecstatic. That is a positive. I really appreciate all of your guys and all the prayers that have been sent up for me. Please keep them coming. I guess I will have a long month ahead of me but if it cures me I am willing to do anything. God Bless you all and I hope that you have had a wonderful day!!
I love you guys. I will keep you posted.
Karen

[jo629]

Thanks for the welcome. Be careful what you wish for or I'll be on here all the time!LOL
I feel like I've given up all this good stuff, but they keep happening. I've lost 17 lbs. in the process, I like that! Of course though I've given up M&M's and all other chocolate, but losing the M&M's hurts the most. I try to stay away from sugar because I notice I have more when I'm eating sugar. No caffeine, no alcohol. Although I still have the occasional glass of wine mixed with diet 7 or I might have a beer.
My hubby is pretty good about all this. Has listened to me ramble on about it. He can't get why I just don't take my Drs. word for it. It's hard to, you know. Unless it's happening to you, you just don't have the same understanding.
Thanks for listening.
Have a great night all. Peace.