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639543 tn?1297027634

Any suggestions - infantile fractures??

As most of you know, Dameon has 8 broken bones, unexplained, and as of right now it's being called child abuse. Two doctors believe it's absolutely child abuse, two other doctors believe it could be OI, but also think he's not a classic case, well, DH, my mother and I know it's absolutely not child abuse, so it's up to me to find out what's wrong with my son, since none of the doctors will, as they just ASSUME it's child abuse. I need to know absolutely ANY bone disease in infants that could cause multiple fractures, or for bones to easily break. Right now Dameon is being tested for hypophosphatasia, leukemia, and osteogenesis imperfecta, any other suggestions, so I can do more research, and have Dameon tested for absolutely every possibility. Thanks in advance!
33 Responses
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172826 tn?1423422956
CYW
That's good to hear, I wish you the best of luck...I really do hope you find some answers, i didn't mean to come off sounding so harsh , I know sometimes it happens and no one would ever want to think someone as close would hurt their baby so i didn't want you to be blind sighted by all of this. good luck!
Helpful - 0
639543 tn?1297027634
CYW - I AM open to all possibilites trust me, but I'm very very very confident when I say I don't believe anyone would EVER hurt my son. And NO that "bruise" on his head turned out to be a bunch of veins in Dameon's head, because I took him to the ped. and she pointed out the exact same thing on the back of his head. OF COURSE I'm going to stick up for my son over my mother and my husband, I care way more about his safety than I do their reputations, and I would NOT tolerate Dameon getting hurt in ANY way shape or form. The bruises Dameon had were SMALL and they were where I changed his diaper (on his legs where I lifted them up), and on top of it all he's mild anemic so OBVIOUSLY he's going to bruise easily. Being mild anemic, he would have MASSIVE BRUISES from abuse enough to break a babies bones that I WOULD HAVE NOTICED. The fact IS, that we found out Dameon is WAY more fragile than normal infants, and we've handled him MUCH more carefully, THAT is why he has no new fractures, and NO test result has come back negative but leukemia and hypophosphatasia, that they just wanted to make sure he didn't have. He ALSO had an MRI to make sure he didn't have SBS, and HE DIDN'T. We talked to one of the best specialists in NYS with my caseworker about the markers of child abuse vs. a disease, and he believes it's a disease because he has NO markers of child abuse. So comments like the ones you are making are NOT necessary, I OBVIOUSLY am doing what I can to keep my son safe, AS IS my mother and my husband, don't make me out to be completely oblivious, my son would have to have had MASSIVE BRUISES all over his body with 9 BROKEN BONES, if he had the bones of a normal infant.
Helpful - 0
202436 tn?1326474333
I see where CYW is coming from.  While Kim may not personally be hurting that baby, you can NEVER know 100% for sure that someone else isn't doing it.  This is a very tricky situation for everyone involved.  BUT I think at this point one of the most important things to remember is that he has not gotten any new injuries.  That poor little boy has already been through hell, bruises, broken bones, numerous tests.  So if he is not sustaining any new injuries at this point, progress HAS been made.  Now the question remains...HOW and/or WHO?  There have been uncountable number of cases where someone insists that "so and so" would NEVER hurt their child/grandchild and it turns out that "so and so" really is.  I honestly and truly hope this is not the case but like CYW said THERE IS the possibility.  

If this turns out to be some disease or something causing it and no abuse was involved then yes it really really ***** that they had to be drug through all of this ...BUT... as a parent I would much rather know that everyone had my CHILD'S best interests in mind and didn't just turn the other cheek.  
Helpful - 0
933846 tn?1353452448
Wow this is hard. I would say please continue to run all the test possible to find out if there is anything medical wrong with the baby. Then on the other hand I wouldnt keep my eye off of my baby. Especially when I 1st learned of the broken bones. I would only want to change the diapers, watch him or even feed him. I know that easier said then done but I would only want to protect my son and I mean from husband, mom or Mother in law. Like CYW and Sarah said you can only know that you have or havent been abusing your son. You can't speak for anyone else. People are cruel in this world and its especially hard to think that someone so close to you would do such a thing but its possible.

I'm so sorry you are going thru this.
Helpful - 0
172826 tn?1423422956
CYW
and another thing...who is to say that nothing has been going on when none of us are even there...even when kim isnt there you never know.. how often do you hear of people harming their own babies...or a close friend or a family member.. the fact of the matter is it is still a possibility...
Helpful - 0
172826 tn?1423422956
CYW
it isnt the fact of placing blame it is the fact of finding out...the facts are there or so according to the facts this is the result...if my child had broken bones and since he was no longer residing with me he had no new ones...hmmm it would surely make me wonder
Helpful - 0
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