Any suggestions - infantile fractures??

[Kimberlee_20]

As most of you know, Dameon has 8 broken bones, unexplained, and as of right now it's being called child abuse. Two doctors believe it's absolutely child abuse, two other doctors believe it could be OI, but also think he's not a classic case, well, DH, my mother and I know it's absolutely not child abuse, so it's up to me to find out what's wrong with my son, since none of the doctors will, as they just ASSUME it's child abuse. I need to know absolutely ANY bone disease in infants that could cause multiple fractures, or for bones to easily break. Right now Dameon is being tested for hypophosphatasia, leukemia, and osteogenesis imperfecta, any other suggestions, so I can do more research, and have Dameon tested for absolutely every possibility. Thanks in advance!

[Kimberlee_20]

Court went HORRIBLE, since Dameon has no new fractures (OBVIOUSLY, because now we know to handle him MUCH more carefully, so we don't break any new bones) it's pretty much 100% pointing at child abuse in the judge's eyes, so we just have to wait for the test results.

KeyD - I don't know, but I should definitely be on it, haha! My poor baby!

[KeyD]

what a horrible situation. I too agree that it sounds like there is really something wrong with Dameon. I hope you find the answer. I am glad to hear that they are testing him to find out what is wrong. Does that show on TLC/Discovery Health "mystery diagnosis" have a web site?

[Hol739]

How did Court go? I hope things are looking up for you!!! It's awful!!!

[sweetangel7]

Soooo, how did court go?  Did they order an 'investigation'?  Another medical opinion?

[Kimberlee_20]

The thing is though, Dameon has had NO other signs of abuse, I know DH, my mother and I (all who are being accused of abuse) would NEVER hurt Dameon. I asked Dameon's ped. why Dameon bruised/cried in pain when I picked him up under the armpits, or lifted his legs to change his diaper, they said he bruised easily (turns out he's mild anemic - a symptom of osteogenesis imperfecta/brittle bone disease), and that he didn't like being held under the armpits (turns out he has a bunch of broken bones). I have taken Dameon about a total of 7-10 times to the ped. between the first two months of his life, at these appointments he had the broken bones, but no one knew about them, because there was NO external trauma. If anyone was breaking Dameon's bones, he would have massive bruises, because it SHOULD take a lot of force to break a babies bones, if it's a normal baby with normal bones. When Dameon stopped using his arm, we assumed it was asleep (because we had just woken up), or dislocated, for the simple fact that there was absolutely NO bruises/anything wrong with his arm, his arm looked perfectly normal, it was just not working. It just doesn't make sense to me, it DOES cross my mind once in a while, could someone have really hurt my son? But then I think, absolutely not, because there would be outward signs. ALSO, Dameon had an MRI done, and it came back completely normal. I'm just so frustrated, and so upset, I feel completely numb to everything.

[Victoria01]

I knew it had another name, but as I was typing I couldn't think of it. :)