Any suggestions - infantile fractures??

[Kimberlee_20]

As most of you know, Dameon has 8 broken bones, unexplained, and as of right now it's being called child abuse. Two doctors believe it's absolutely child abuse, two other doctors believe it could be OI, but also think he's not a classic case, well, DH, my mother and I know it's absolutely not child abuse, so it's up to me to find out what's wrong with my son, since none of the doctors will, as they just ASSUME it's child abuse. I need to know absolutely ANY bone disease in infants that could cause multiple fractures, or for bones to easily break. Right now Dameon is being tested for hypophosphatasia, leukemia, and osteogenesis imperfecta, any other suggestions, so I can do more research, and have Dameon tested for absolutely every possibility. Thanks in advance!

[spade22]

I saw a recent story on a medical program about a child with OI - the baby's leg was broken my the mere act of changing her diaper and the medical professionals, at first, thought it was child abuse.  A skull x-ray was used to diagnose OI in this case as many cracks and imperfections could be seen which was indicative of the condition.

[martikadragoon]

Victoria~ brittle bone and OI are the same disorder. :)

Kimberlee~ i'm unaware of any other disorders that would result in broken bones in an infant.... but i'll keep looking and asking around to any friends in the medical field. My son's ped might know of something. she see's alot of different things in loma linda so she may have an idea....

[sweetangel7]

What about a fifth or sixth opinion...I'd keep taking him to different doctors to get as many professional opinions as possible.  How scary it must be to be in your shoes!  And poor Dameon too!  

Keep us posted...

[Victoria01]

I knew it had another name, but as I was typing I couldn't think of it. :)

[Kimberlee_20]

The thing is though, Dameon has had NO other signs of abuse, I know DH, my mother and I (all who are being accused of abuse) would NEVER hurt Dameon. I asked Dameon's ped. why Dameon bruised/cried in pain when I picked him up under the armpits, or lifted his legs to change his diaper, they said he bruised easily (turns out he's mild anemic - a symptom of osteogenesis imperfecta/brittle bone disease), and that he didn't like being held under the armpits (turns out he has a bunch of broken bones). I have taken Dameon about a total of 7-10 times to the ped. between the first two months of his life, at these appointments he had the broken bones, but no one knew about them, because there was NO external trauma. If anyone was breaking Dameon's bones, he would have massive bruises, because it SHOULD take a lot of force to break a babies bones, if it's a normal baby with normal bones. When Dameon stopped using his arm, we assumed it was asleep (because we had just woken up), or dislocated, for the simple fact that there was absolutely NO bruises/anything wrong with his arm, his arm looked perfectly normal, it was just not working. It just doesn't make sense to me, it DOES cross my mind once in a while, could someone have really hurt my son? But then I think, absolutely not, because there would be outward signs. ALSO, Dameon had an MRI done, and it came back completely normal. I'm just so frustrated, and so upset, I feel completely numb to everything.

[sweetangel7]

Soooo, how did court go?  Did they order an 'investigation'?  Another medical opinion?