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Benzodiazepine addiction - insight needed badly

about 5 months ago I was placed on 3mgs of Klonopin a day to control very severe neuroleptic induced akathisia by a neurologist. During that time, I became quickly tolerant to the effects and ashamed to tell my neurologist since he had already increased the dose so heavily. So I went to my primary care doctor to describe the same symptoms. A clear wrong choice, but I felt cognitively foggy and above all so desperate. While I had signed releases so all my physicians could talk, he didn't ask any questions and I didn't mention the klonopin. I was desperate for help. He gave me 1mg of ativan per day with 1 refill. My neurologist, months later did find out and completely kicked me out of his clinic, not even giving me a chance to explain but yet not cancelling my refills.

So here I am, completely physically dependent on klonopin. I lost my health insurance and cant afford to pay cash to see my PCP. I went to the emergency room to be turned away and told no detox would accept me because I did not have insurance. This month I filled my refill, only to black out after taking ambien (another med I have a legitimate script for but only take sometimes) and wake up the next day to find my pills missing, my car parked in a place I don't remember and my apartment trashed. I know I did all of it, I just don't remember. Akathisia is a complete hell on earth but addiction is an entirely new hell I did not see hitting me like a ton of bricks. My life is out of control and I'd never imagined it would begin with a doctor and not a street drug. I am certainly humbled.

I will be facing withdrawal and I am scared to death, knowing I could have a seizure and die alone in my apartment. I have gone into withdrawal before and it causes me to shake uncontrollably, panic, hallucinate, and vomit. I have read this can last for up to a year or more. I am a slave to pill bottles and I'd rather go through anything but this as I see no concrete end in sight. I know this site is not for medical advice, but I thought if anyone who has been through something similar could relate their story, it might help me. I'm 21 with no family, no doctor, feeling as if I have no place to turn. Especially for something that could threaten my life but I won't know it until it I am actually in real danger. Please help.  Any kind words... similar experiences... anything.... please
Best Answer
4204073 tn?1361831476
Is your Dr potentially refilling only to help you out until you see him?  Otherwise all he is doing is setting you up to relapse and go through withdraws again!   That scares me.    Yes, the Dr. prescribed them.  Yes, we took the meds.  Yes we self medicated and took more than we should have.   Yes, we lost control over our usage.  However, keeping it a secret is what is/ was keeping us sick.  You MUST share with your Dr or the ER what is going on with you so they can properly supervise your tapering.  
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480448 tn?1426948538
I too am a bit confused.  What are all the scripts you have, what are they for, and where did you get them?  Yes, you need to be careful you're not red flagged.  If your PCP gave you enough to taper for a month, you should only need to fill that script right?  That's what I would recommend..i wouldn't even fill the others.

How much were you ACTUALLY taking of both meds, and when did you take your last one?

I know you're scared and upset, but hon, you need to be a little more accountable.  Yes, it's an unfortunate situation, but YOU abused the prescription, and chose to not be honest about the Ativan.  The doctor had every right to cut you off.  Yes, you are aware of the dangers of w/d...but typically, once a doc finds out you've been abusing meds...and doctor shopping (which is basically what you did)...they're not willing to risk their license.  You can't fault them for that.

"It is just not fair to me and I am angry. I was put on these meds by a doctor! any person would become physically dependent after 6 months of 3mgs of klonopin a day. It is not as though I took to the streets seeking relief, I suffered through months of ineffective meds and tried to do the medically right thing. "

It doesn't matter that you didn't get your meds from a dealer on a street corner...you abused them and you doctor shopped (by not telling the other doc about the new benzo you had been Rx'd).  You didn't medically do the "right thing".  The right thing would have been to discuss the tolerance with your doctor...not up the dose yourself.  I just honestly think you're doing yourself a disservice by pointing your finger everywhere but at yourself.  You need to take responsibility and ownership...you and only you caused this situation.

You're VERY lucky your PCP is willing to help you by Rx'ing you what he did.  PLEASE do not abuse that script...or you will be out of options.  While you're waiting for your insurance, start making calls to find some help for yourself...both to properly detox off the benzos, and to start putting a recovery plan in place.
Helpful - 0
Avatar universal
Hey NurseGirl,

The scripts I have are 1. an old refill from my old neurologist who kicked me out 2. 6 pills from the ER and 3. the rest from my PCP. All for clonazepam and all of which are completely gone except for the refill I am waiting on. Again, my responsibility even though ambien has been clearly proved to cause people to do things they normally would not. And the ambien, I did not abuse. I take these meds for tardive dyskinesia and akathisia, meaning I have painful, uncomfortable, and embarrassing involuntary movements which have only seemed to respond to clonazepam, as no specialist I have seen (4) was just willing to put me on high doses of a controlled med without exhausting EVERY other option. And they each referred me to the next specialist I saw, all of who confirmed the same diagnoses. So in that respect, I did not go in and demand klonopin, I DID THE MEDICALLY RIGHT THING by making sure no other med would help before I was put on a controlled substance. Then I had no insurance and therefore absolutely no way of discussing with any doctor my tolerance.

I am sorry but anybody in the world would have w/d symptoms given my same situation and despite what you think, they are dangerous to go off of. No one deserves a seizure because they abused a med. I am to blame for one single month of abuse, I could have made a different choice. But directly after, I did try to go to detox even when I had refills, even when I could have kept abusing. I set up a nursing service voluntarily to give my meds daily the second I get my insurance back in 2 weeks. Plus I set up to continue seeing my therapist and a psychiatrist. I am also on a waiting list to see a movement disorder neurologist. Sorry the poor and disabled (I receive SSDI) cannot just pay cash for everything.

It is simply is not my fault that no detox would accept me or that the two free ones in my state had no free care beds. I called daily for weeks. I even tried to kill myself, knowing they would HAVE to admit me to a psych unit and the psychiatrist there agreed with my diagnoses and dosage of klonopin and discharged me on it, citing that I needed to be seen by the best neurologist in the biggest city I live close to in order to control my suffering. I told him, AGAIN, I needed to ween off and he said he was not the doctor who could help me with that. I go to NA and Al-anon. I am doing ALL that is within my power to help myself.

The doctors still need to take responsibility for over prescribing and for not communicating when all 2 of them told me they were sending notes back and forth. Specifically, the neurologist was irresponsible for putting me on such a dangerous med and giving me no where to turn after he turned me out yet and not cancelling any of my 6 refills (the maximum allowed by law), calling me cute, and asking me on dates. DOCTORS ARE SOMETIMES RESPONSIBLE. If he didn't want to lose his license, why did he prescribe the clonazepam AND a barbiturate with UNLIMINTED refills. That is irresponsible. I have spoken with a lawyer and he was cleary out
Helpful - 0
Avatar universal
hit enter before I was finished. He was clearly out of line on multiple fronts, I am not at 100% fault and yet I have taken responsibility. Show some respect to the daughter of a man who died to protect your right to berate me without the full story.
Helpful - 0
4149717 tn?1389503561
Wow, Your angry at someone who is clearly trying to help. I think you need to relax a bit and try to figure out who the anger needs to realy be directed to. You abused the meds which made you get kicked out from another Dr's office and also made your run out of them. How is that anyone elses fault? you say its the Dr's fault for prescribing them to you but did you research the medication at all before you just blindly took it? I get that your angry, I get that being addicted to something and having Dr's cut you off is a horrible feeling, But at the end of the day Noone forced you to take them and noone forced you to abuse them.

And while I appreciate that Father is a veteran who gave his life for our country, I think throwing that at someone like that is unfair and uncalled for IMO. She wasnt berating you at any level!
Helpful - 0
Avatar universal
I was only kicked out by one doctor and other doctors I have been to since have said they really don't hold him in high regard. He acted inappropriately. I did research the medication and was suffering in excrutiating pain. AGAIN, this was for a neurological movement disorder,  not anxiety. I have in no way been cut off. I have received nothing  but helpfulness and sympathy from every doctor besides my original neurologist. It is only a matter of beds available and insurance for detox.

No one forced me to take them and I did do research, I knew the risks of taking them long term. HOWEVER, when several specialists told me this was my best bet at feeling better, I decided to take them. I was never told I would be on them this long term. In fact, I was admitted to a hospital against my will last month and at that point I actually was legally forced to take the medication. If you read my posts, they show you I have been and continue to try and get help. Nobody seems to understand my condition anyway. Trust me, if it was anxiety, I'd just hit the gym more. I have a movement disorder. They are extremely difficult to treat with a poor prognosis. Imagine being young and forced to live with this the rest of your life? I chose relief when a doctor I trusted at the time told me it was the best option and it did help. It still helps, but now I am addicted and IF

you read my posts you will see I am doing all I can to get off these medications. It takes immense courage considering I could stay on them as long as I choose and I am facing the hell of my underlying condition when I finally do complete detox. I am responsible for taking medication wrong, but doctors need to share blame and that is my opinion I am entitled to. I dont know how many times I have to hold myself accountable before people stop blaming me for being sick.
Helpful - 0
Avatar universal
I find it incredibly ironic that people are telling me to not point fingers as they wrongfully point the finger at me. If you are perfect, feel free to pass judgment and blame me. Until you become perfect, stop hurting my feelings. I have been through enough.
Helpful - 0
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