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Mastocytosis Community

This patient support community is for discussions relating to Mastocytosis.
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1 - 6 (of 46) questions
Avatar universal

Anyone experiencing new bone growth with Mastocytosis or MCAS?

anitahorv
I am almost certain after about 8 months (although, the more i learn about the symptoms, i realize many symptoms ive had my whole life) o...
Avatar universal

How negative tryptase test and 3 other positive tests

Babycoco2010
Does anyone else have a negative tryptase test yet have systemic mastocytosis ? Skin biopsy was positive for mastocytosis Upper gi wa...
1 answer   
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Time confusion

lShane86
How do I get my NB on days awake and nights asleep..... please help!!!!
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tryptase levels

oliedrie
Unexpected loss of weight and over-sensitivity to alcohol were reason to visit a doctor. Blood tests were normal except tryptase level o...
1 answer | 1 comment   
Avatar universal

Looking for a MCAS/methylation specialist in So. Calif.

sgtanthony
Would prefer a naturopath or integrative medical doctor. Thanks.
Avatar universal

Question on Masto spots .. systemic?

seadove
I strongly suspect I have a type of Mast Cell Disorder (see under my question for why Im thinking that). Ive had some strange incide...
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