Mastocytosis Community

This patient support community is for discussions relating to Mastocytosis.

1 - 12 (of 46) questions

Anyone experiencing new bone growth with Mastocytosis or MCAS?

anitahorv

I am almost certain after about 8 months (although, the more i learn about the symptoms, i realize many symptoms ive had my whole life) o...

How negative tryptase test and 3 other positive tests

Babycoco2010

Does anyone else have a negative tryptase test yet have systemic mastocytosis ? Skin biopsy was positive for mastocytosis Upper gi wa...

1 answer

Time confusion

lShane86

How do I get my NB on days awake and nights asleep..... please help!!!!

tryptase levels

oliedrie

Unexpected loss of weight and over-sensitivity to alcohol were reason to visit a doctor. Blood tests were normal except tryptase level o...

1 answer | 1 comment

Looking for a MCAS/methylation specialist in So. Calif.

sgtanthony

Would prefer a naturopath or integrative medical doctor. Thanks.

Question on Masto spots .. systemic?

seadove

I strongly suspect I have a type of Mast Cell Disorder (see under my question for why Im thinking that). Ive had some strange incide...

abdominal cancer

beteta

What is the life expectancy of undiagnosed abdominal liposarcoma

abdominal cancrer

beteta

What is the life expectancy of a abdominal liposarcoma

Little girl Mosquito Bites

laylablu

Is it possible for a 7 year old girl to get mosqito bites on the crease (where her upper thigh and leg meet), and then pop up on her libi...

heart medications and masto

Sawe

Hi I have systemic masto, and two heart conditions, they won't to put me on betablockers but I heard they are not recommended with masto,...

Systemic mastocytosis and heart medicines

Sawe

Hi, I have a rare form of masto since 1995, it was never in the skin, started in bone marrow at age 50, but now I have two deadly heat di...

Type of doctor to see for diagnosis

Snflwris

Hello, I have not yet been diagnosed with Mastocytosis, but I was wondering what type of doctor diagnoses this? I do have autonomic n...

1 answer

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