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Mastocytosis Community

This patient support community is for discussions relating to Mastocytosis.
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1 - 6 (of 46) questions
Avatar universal

Anyone experiencing new bone growth with Mastocytosis or MCAS?

anitahorv
I am almost certain after about 8 months (although, the more i learn about the symptoms, i realize many symptoms ive had my whole life) o...
Avatar universal

How negative tryptase test and 3 other positive tests

Babycoco2010
Does anyone else have a negative tryptase test yet have systemic mastocytosis ? Skin biopsy was positive for mastocytosis Upper gi wa...
1 answer   
Avatar universal

Time confusion

lShane86
How do I get my NB on days awake and nights asleep..... please help!!!!
Avatar universal

tryptase levels

oliedrie
Unexpected loss of weight and over-sensitivity to alcohol were reason to visit a doctor. Blood tests were normal except tryptase level o...
1 answer | 1 comment   
474256 tn?1237989696

Anyone else still have Urticaria into adulthood?

Jennifer78
I didn't really have a question...I just saw that there was a new Mastocytosis forum! I just wanted to say hey! I have Urticaria Pigmen...
30 answers   
Avatar universal

Cause of Urticaria Outbreak

Jana1952
Just wondering if anyone else has had outbreaks of this painful, itchy rash that looks like someone has clawed your back, chest, neck. M...
2 answers   
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