Mastocytosis Community

This patient support community is for discussions relating to Mastocytosis.

1 - 20 (of 46) questions

Anyone experiencing new bone growth with Mastocytosis or MCAS?

anitahorv

I am almost certain after about 8 months (although, the more i learn about the symptoms, i realize many symptoms ive had my whole life) o...

How negative tryptase test and 3 other positive tests

Babycoco2010

Does anyone else have a negative tryptase test yet have systemic mastocytosis ? Skin biopsy was positive for mastocytosis Upper gi wa...

1 answer

Time confusion

lShane86

How do I get my NB on days awake and nights asleep..... please help!!!!

tryptase levels

oliedrie

Unexpected loss of weight and over-sensitivity to alcohol were reason to visit a doctor. Blood tests were normal except tryptase level o...

1 answer | 1 comment

Looking for a MCAS/methylation specialist in So. Calif.

sgtanthony

Would prefer a naturopath or integrative medical doctor. Thanks.

Question on Masto spots .. systemic?

seadove

I strongly suspect I have a type of Mast Cell Disorder (see under my question for why Im thinking that). Ive had some strange incide...

abdominal cancer

beteta

What is the life expectancy of undiagnosed abdominal liposarcoma

abdominal cancrer

beteta

What is the life expectancy of a abdominal liposarcoma

Little girl Mosquito Bites

laylablu

Is it possible for a 7 year old girl to get mosqito bites on the crease (where her upper thigh and leg meet), and then pop up on her libi...

heart medications and masto

Sawe

Hi I have systemic masto, and two heart conditions, they won't to put me on betablockers but I heard they are not recommended with masto,...

Systemic mastocytosis and heart medicines

Sawe

Hi, I have a rare form of masto since 1995, it was never in the skin, started in bone marrow at age 50, but now I have two deadly heat di...

Type of doctor to see for diagnosis

Snflwris

Hello, I have not yet been diagnosed with Mastocytosis, but I was wondering what type of doctor diagnoses this? I do have autonomic n...

1 answer

Anyone else still have Urticaria into adulthood?

Jennifer78

I didn't really have a question...I just saw that there was a new Mastocytosis forum! I just wanted to say hey! I have Urticaria Pigmen...

30 answers

One Day Only - CCF Oncologists "Live" on MedHelp!

Cindy

Cancer Therapy: Can It Hurt Your Heart? Thursday Aug 01, 2013, 12:00PM - 01:00PM (EST) For one day only, doctors from the Cleveland...

Cause of Urticaria Outbreak

Jana1952

Just wondering if anyone else has had outbreaks of this painful, itchy rash that looks like someone has clawed your back, chest, neck. M...

2 answers

were do I go

peje61

Hi all I was diagnosed with systemic mastocytosis after 2 anaphylaxis fits mine has been in my bones causing ostoporosis I have had this ...

1 answer

Different types?

somemonkey

How many different types of mastocytosis? How is it diagnosed? How is mcad diagnosed?

4 answers

What does Mastocytosis look like?

Dnmh

Funny, I was just looking into this and here is this community! I've been a member of MedHelp since Sept 08. My docs and I have been t...

4 answers

What are your symptoms

Jifizap53

Was amazed to find this forum as I've never met another person with UP! My adult son has had UP almost his whole life. His only problem...

2 answers

masto and the teyes

Skeeter551

Can Mastocytosis affect ones eye sight? My daughter has been diagnosed with MS but they have found absolutely no lesions. She seems t...

2 answers

2 3

Ask a Question

VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

Popular Resources

Ouch! What Bug Just Bit You?

Learn to identify and prevent bites from summer’s most common pests.

Tanning Themselves to Death: A New Teen Fad

Doctors argue for legislation to curb this dangerous teen trend in the latest Missouri Medicine report.

10 Cold Weather Skin Care Tips

10 ways to keep your skin healthy all winter long

Can You Win the Battle Against Cellulite?

How to get rid of lumpy fat on your arms, hips, thighs and bottom

The Glowing Skin Diet

Diet “do’s” and “don’ts” for healthy, radiant skin.

Common Skin Diseases and Conditions

Images of rashes caused by common skin conditions